Alert icon
We're changing our privacy policy. This stuff matters.  Learn more  Dismiss

Retinitis Pigmentosa Support Group meet inspiring people with RP

Loading...

Sign in or sign up now!
Alert icon
Upgrade to the latest Flash Player for improved playback performance. Upgrade now or more info.
1,169
Loading...
Alert icon
Sign in or sign up now!
Alert icon

Uploaded by on Oct 16, 2010

This video has been made by me to pay tribute to people with RP ,they live each day each week each month knowing one day they may lose their sight until there is a cure they live with the only thing that keeps them going and that`s HOPE that one day a cure will be found .
Until then this group can be found on facebook and is there to help support YOU and help you find new friends and share the same problems that you have to face on a daily basis from people that are ignorant to blindness / visual impairment .
YOU are wonderful,amazing people !

(RP) this is a deterioration of my Peripheral vision and night vision (night blindness). there is no cure at this given time .
RP conditions are progressive, but the speed and pattern of deterioration of sight varies from one person to another. For most people, the first effect of RP is the gradual loss of peripheral vision. This means that you can start to miss things slightly to the side of you or trip over or bump into things you would have seen in the past. Most people with RP eventually have a very restricted visual field, leaving only a narrow tunnel of vision.

Most people with RP retain useful central vision through their twenties, which means the ability to read and recognise faces is not greatly affected. By 50 years of age most people's central vision is affected to the extent that reading is a problem without the help of a magnifier.

Many people who have RP find the glare from bright lights and sunlight becomes an increasing problem. The retinal cells become less able to adapt to changing light levels and it becomes more difficult to use your vision when you move between a light and a dark room.

Category:

People & Blogs

Tags:

License:

Standard YouTube License

Link to this comment:

Share to:

Uploader Comments (RPSupportGroup)

  • Bless you.. how wonderful! So glad I found your group. :)

  • @AdvanceMarketingNow

    Thankyou :)

  • I am amazed by the video! Thank you, dear Jackie! <3

  • @olesyamaksimenko

    My pleasure Olesya ,a wonderful tribute to your Alessandro !:)X

  • Lovely Jackie.....Happy Birthday To the group....xx

  • @colleensj35

    Thankyou so much Colleen ,let`s keep raising awareness of RP ,onwards and upwards !!x

see all

All Comments (12)

Sign In or Sign Up now to post a comment!
  • i also suffer from this im 26 going to be 27 this april ever since i was a kid i had trouble seeing at nigth and i still do thats why i m so paronoid going out at nigth so i never do but i guess im going to have and stay positive about this

  • @ashabdou61

    Glad you like it :))!!X

  • Happy 2nd Birthday Retinitis Pigmentosa Support Group !!!:)

  • Thanks for this outstanding video

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more