Alert icon
We're changing our privacy policy. This stuff matters.  Learn more  Dismiss

Stem Cell Banking: The Perspective of an iPS Donor Family

Loading...

Sign in or sign up now!
Alert icon
Upgrade to the latest Flash Player for improved playback performance. Upgrade now or more info.
317 views
Loading...
Alert icon
Sign in or sign up now!
Alert icon

Uploaded by on Jun 1, 2011

"Your twin daughters have an extremely rare, fatal disease called Niemann Pick Type C and there's nothing you can do for them". Those were the devastating words that Chris Hempel and her husband first heard in 2007. Rather than just give in to this fate, the Hempels are proactively engaging researchers to try to save Addi and Cassi's lives. This journey includes donating skin samples to cell banks so that researchers can create induced pluripotent stem (iPS) cells, a promising technology which may help undercover treatments for their daughters. In this video, Chris Hempel speaks to the CIRM Standards Working Group to present a patient advocate's perspective on the challenges of rare disease research. Hempel was introduced by CIRM Governing Board member, Sherry Lansing.

Link to this comment:

Share to:
see all

All Comments (0)

Sign In or Sign Up now to post a comment!
Loading...

Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more