Spasmodic Toticollis Cervical Dystonia and Botox
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interesting
spinceara 2 months ago
this isn't very accurate fyi
PearlnotBill 6 months ago in playlist Parkinsons and Dystonia
1:44 :(
Sojacheerleader 10 months ago
The doctor at the government run hospital in Maryland experimented on me for one year. I was given virtually no information on the side effects of the drug. There was no "standard of care,' no 'expectation setting,' no follow up, and no cared how i felt during the intervening periods. There was only a curt "hurry up i have other patients to see. Get a promise for a standard of care as describe in "The Dystonia Patient." I will avoid medical learning clinics and see real doctors.
stopthemud 1 year ago
@kathrynkmarie Did your CD cause you headaches or muscle spasms in your head?.
Draziom203 2 years ago
@bsunshinez Botox can cause pnumonia, bronchitus, pulmonary infection etc. It is a poison and has many side effects like every medication. You must be careful and also outweigh risks vs benefits.
Draziom203 2 years ago
Botox helped my cervical dystonia but I am fearful that is caused respiratory/cough/cold symptoms the last two times I received the injections. Is there anyone else who has had that problem? I am due for my next injections at Mayo and wondering if I wil get sick again. Any information will be helpful!
bsunshinez 2 years ago
Is there anyone out there who has had a serious respiratory infection/cough/cold develop after botox injections for cervical dystonia? I believe that the last two times I had the injections they produced these symptoms. I am due to get the injections again and we will see if the adverse reactions are from the botox or not. Any help will be appreciated. Mayo Clinic neurologist are wonderful but have not seen these reactions.????
bsunshinez 2 years ago
i had botox treatment for over a yr then tried the baclofen oral. the highest dose did little but i qualified for the trial which they do before the pump. i got the pump one year ago and was able to manage my dystonia/cd/and tremors by doing little phy activity and sleeping alot. the pump has helped with head to toe muscle spasms "storms" but cd has gotten worse and out of all my symptoms the neck pain is unbearable. i went 4 botox today and hope tomorrow will be better.fight for a cure!
ShakeyAmy 2 years ago
Neurologists tell CD patients not to see chiropractors. I did see one, ignoring doctor's orders and his manipulation made things worse. I would warn people to speak with a much more educated "neurologist" and speak with him/her regarding treatment. Also there is a link between being of Jewish descent and dystonia.
bsjsesaz 2 years ago