National Fragile X Foundation 25th Anniversary

Dr. Randi Hagerman, founder of The National Fragile X Foundation (NFXF), and her husband, Dr. Paul Hagerman, invite us into their home to discuss their experiences working in the Fragile X community. The Hagermans have devoted their lives to Fragile X research and treatment.

The NFXF would like to thank Randi and Paul for their time in making this video and for their years of dedication and service to the Fragile X Community.

Category:

Nonprofits & Activism

Tags:

• Randi Hagerman
• Paul Hagerman
• Fragile X
• fragile X syndrome
• intellectual disability
• FXS
• FXPOI
• FXTAS
• autism
• 25 Anniversary
• NFXF
• National Fragile X Foundation

[bole53]

Randi,

Ryan, our son was born 25 years ago and we came to the Denver clinic when he was 18 months old. I can hardly believe that much time has passed. It would have been very hard raising Ryan without your help and dedication to Fragile X Now I feel privileged to raise a son with Fragile X. He is an amazing young man who has held done 3 jobs at one time and also helps with the Drake University football team. My best to you and Paul.

Patty Bole.

[lynninator30]

Great video. You two are so special to the Fragile X community. It has been 10 years since we came to see you in Denver with our son Jacob and everyime I see you it's such a pleasure. We applaud you for what you do for all of us!

[melise02]

I love you both and will be forever thankful to both of you. You've listened and understood at a time when no one else did, Randi..you have been my doctor, my friend, my teacher, my confidont, you will always have a special place in my heart. God bless you both always, Marilyn Therrell

[scarlettspyder]

Thank you for all you do for us and our families, we have been the 'invisible ones' for so long.

Sarlett spyder