infantile spasms/seizures

My son has tuberous sclerosis and has been having infantile spasms for about a month now. He is taking vigabatrin and we are waiting for the miracle drug to kick in

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[beastinblack]

I had west's syndrome when I was 5 months old but recently tested as 129 in an official IQ test. Dont give up hope about your child's future.

[salvamg89]

I will pray for your son.

[LADDERNJ]

Don't give up, poor baby and mama

[julieandjason4]

my son has TS and he also had infantile spasms as a baby, its just awful when you can do nothing but watch them suffer. He had vigabatrin but it didnt really help, thankfully he grew out of them

[sruasonid]

Hi my baby has been doing this exact thing every doctor was saying it was colic but it wasn't until they saw it for themselves we got diagnosed with infantile spasms now on hi dose if steroids until they can find a suitable medication for him :(

[EBouhendi]

I hope he get better,

This book might be useful, you can find it on online book stores.

Infantile Spasms: Diagnosis, Management and Prognosis

[smoochy0711]

poor baby!!!! in nursing school learning about this aww im so sorry

[ryeemitch]

@mimi0674 the spasms occur quickly (a myoclonic jerk) at 0:14, 0:36, 0:52...

[irenewong2007]

hi, may i know how is your son condition now? is he recover or cont. with medicine?

[amysarahh]

Hi...I realize this was posted a long time ago but I was wondering how your son is doing. My daughter had infantile spasms and Vigabatrin was a miracle drug for her. She has TSC and is developing great! We go to a hospital in Boston and it is wonderful...I am thankful for our neurologist!!

[jamkulit]

my 6 month kid has those similar jerks... only stronger... he's on valproic acid and phenobarbital... i dont know how i could deal with it... i pity my child but i cant do anything....i feel so hopeless and helpless

[historyofscars]

my daughter is 11 weeks and she does this same thing but the pediatrician said she's prolly fine but im still worried what did you do to get them to diagnose your baby?