Multiple Sclerosis vlog on switching Interferons & new relapse

I have switched from Rebif to Avonex. (I was on Rebif for three successful years. My relapses were cut in half and they were much less severe.)
However, I started to lose some tissue in my legs, so I ran out of place to inject! I have been on Avonex for 6 weeks, and I like it very much.
In this vlog, I will talk about the relapse I am in at the moment (it's a bummer, I know). I will be injecting myself with the Avonex as I talk, but next week I will record an indepth vid about injecting Avonex and I will show it up close.
Thanks for watching!

Category:

People & Blogs

Tags:

• Multiple Sclerosis
• MS
• avonex
• rebif
• injecting
• relapse
• needles

[dhwilson2]

tesla girl,

I have MS and am on Avonex. I saw your video post on needle size comparing Avonex needle to the Rebif needle.

You may not realize that the needle you show is the OLD needle and Avonex offers a 1" needle now which is VERY close to rebif needle if you showed them side by side.

You showed the old 1 1/2" needle which is much longer as your video shows.

Anyway keep up the vlogs and keep up your spirit! good job!

D

[teslagirlM]

Hi D,

Thanks for your post. Does your needle have a green end, as opposed to the blue on mine?

In the UK, they automatically come with the blue, which is the 1 1/2 incher, but you can ask for the smaller one. I was told however, that you should not use the smaller to inject your bum, as it may not hit the muscle. (depending on bum size of course!) Thanks for raising this issue!

Best,

Marlo

[isa2222]

where are living ? Britain somewhere ? thanks for sharing I understand what you are going through ...... how are you going with Avenex? i tolerated it for one year and stopped now copaxone....keep in touch if you wish Isabella

[teslagirlM]

Hi Isabella,

Yes, I live in London.

What made you stop avonex? I am not sure how well it is working for me, but I will give it a little more time!

Thanks for your post!

Marlo

[ambc98]

i am 31 had ms 6yrs i no how u feel i take avonex however they want to switch me to rebif im so scared dont worry about avonex i no its great dont let that needle scare u i dont no how u took rebif like that i think i have a kidny infection my legs are not wken well if i go back 2 nero for steriod he will say why didnt u change 2 rebif i dont plan on it but tell me how you feel on rebif good vidio

[teslagirlM]

thanks for commenting! So, you are perhaps going to do the opposite switch?! From Avonex to Rebif. The Rebif needle is easy as pie. As for the side effects, it hit me hard- my Neuro said that my reaction was extreme though- bad chills, muscle aches for 3 solid months. however, it cut MY relaspes in half for three years.

I would imagine u will find as I have that switching between these 2 drugs won't be as bad because they are the same strain of interferon beta 1-a.

You can email me too.

M

[Jneil1976]

What a great spirit.

[teslagirlM]

Hi Kerri,

Thanks again. Yes, our journey has indeed been similar this week, and similarly we will get better and be dancing by Friday?

I will definitely plan a holiday to Australia. there are so many beautiful and interesting places I want to see there! I will follow the dream.

Get well!

Marlo

[teslagirlM]

Thanks Bill. Your method is better! I don't have the initial jab fast enough yet.

Hope you are well. Just watched the 'uncle' Obama video. Hilarious!

Be well,

Marlo