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this disease ruined my life
SUNMAYDEN518 1 year ago
this disease ruined my life. I suffered for years before I got diagnosed and was then bedridden for years. Please study this more to help find a cure
SUNMAYDEN518 1 year ago
@shapeofabee I totally agree with you that meat and dairy are the worst food to eat for an IC patient and I would add most grains to the list (Gluten especially) since they are so acidic. For me, the key to success is : Eating a low fat raw vegan diet (fresh whole fruits, greens and vegetables), exercises, yoga, stretches, breathing exercises and even meditation !
elyze8 1 year ago
I self Catheterize everyday and it helps... I was diagnosed in 1992 about a year after my hysterectomy for Endometreosis Holly
kidofponymaker 1 year ago
The IC diet is totally bad. Meat and dairy are some of the worst things an person with IC could eat. The treatments for IC are barbaric and damaging in the long term. The best thing you can do is buy some PH strips and keep your body as neutral as possible. But even that is not gonna help everyone.
shapeofabee 1 year ago
Thanks for posting. Let's make the world aware of this dread illness. BTW, they say mostly women have IC. Well let me mention that I am a man and I am 99% certain I have IC. I wasted years in the doctors offices being treated for an enlarged prostate and never got an ounce of relief. Some days the pain is so bad I wish I would die. IC has worn me down and made me more miserable than I already am.
BUNGLEJYME 2 years ago
Don't hold you breath with Obama-care.
BUNGLEJYME 2 years ago
I understand what you mean......
Melissa230984 2 years ago
I feel your pain. Ive been there and Im still there and im fighting with everyting ive got. My doctor has likened this pain to cancer.
Melissa230984 2 years ago
I feel relief getting this diagnosis after years of being treated for kidney and UTI infections, I feel hopeful that there is something I can do about it, not to mention the people in my life that told me to suck it up, (I would like to see them catheterized ever week and injected with heparin)
I am grateful for getting this far...
tinainfla 2 years ago