Rhys' video - Lennox Gastuat Syndrome - Tuberous Sclerosis - Epilepsy
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Uploaded by JOJO19844 on Jan 9, 2011
Made for my son Rhys, who was diagnosed with Tuberous Sclerosis as a baby to raise awareness
- 5 likes, 0 dislikes
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Wonderful video, thank you for sharing. We'll give EVERYTHING...but up!!!!
BeccaPatterson80 1 month ago
Wow there are so many similarities between my boy and yours!! Mine has Tsc and dealt with infantile spams.Kasey was born on 10-12-06 he recently had brain surgery his whole right temperal lobe removed! How is your son doing? Is the vns working? I hope so!!! Take Care
mommasmith1977 8 months ago
Such a touching video. I am an in-home nurse of a 6 month old who has been diagnosed with LGS, which caused me to want to learn more about it. I wish the best for your family and your beautiful son. He sure is a trooper. As a mother myself I can't even imagine what it is like for you to go through the obstacles you must deal with. Thank you for sharing!
lilmamaj9 10 months ago
God bless and thank you for sharing Rhys story, it helps to know we're not alone.
girlchristian1 1 year ago