Jonah's shaking

Jonah in his classroom during a couple of his episodes.

Category:

People & Blogs

Tags:

• Jonah
• tourette
• movement
• disorder

[DerbyDaisy]

Jonah's condition has deteriorated; Deep Brain Surgery was our last hope (after years of meds, therapy, chiropractic, acupuncture...). He had the surgery in June 2010 and is doing fantastic. His tics are now reduced to minor twitches and he's able to fully function on his own, ride a bike, take tae kwon do, play basketball...

Discovery Health and TLC will be doing a show "Tourette's Uncovered" on Sept. 14, 2010 featuring Jonah & his surgery as well as 3 other boys with TS.

[TammyToe]

How stupid for this kid to be in a public school setting. Hey PARENTS! HOME-SCHOOL THIS KID FOR CRYING OUT LOUD!  IDIOTS!

[jaemarie830]

@TammyToe why should he be denied social interaction and education because he is wired differently. It's obvious that he has an OT that comes to class with him, and teachers and classmates who are comfortable and used to him. I went to school where not all the kids were always "normal" it builds empathy in "normal" kids, teaches them tolerance and acceptance and helps them to understand differences, because this world is FULL of differences. That's the beauty of it.

[DerbyDaisy]

Thank you! That's exactly why we keep him in school! We have stressed that maybe his disability is to teach others a lesson in compassion as well.

[DerbyDaisy]

Jonah is in a parochial school where his father is his teacher and we personally pay for an aid to sit with him and help during school. Keeping him out of school would just amplify the fact that he's different. His classmates and the entire school is fiercely protective of him and he is never teased or treated poorly. So Tammy, while I appreciate your concern for my child, next time try asking questions before you resort to name calling.

[Supergrant22]

this is soo sad i feel bad for this kid i dont know any medical things or im not that smart or know any thing about this person or his illness but im a person and i can feel sympathetic too so i thought i would leave a comment i am dislexic i have gone threw alot in my life but i know if u have ur mind to it you can acchive any thing i wish u the best of luck

[DerbyDaisy]

Thanks so much for your kind thoughts.

[Colin4566]

Can you upload tourettes uncovered? cant find it anywhere!

[Colin4566]

More videos of how hes doingnow?

[ginniepogo1]

@TammyToe well mabby he wants to be with kids

[rarecockneyguvnor]

My son charlie has this condition may godbless you little boy you are very brave.

[mybirthdayisinfeb]

@inagod i think it is

[brlaranjo]

@DerbyDaisy so he doesn't have the severity that he used to because I was watching some a trailer of the doc. and it featured Jonah was thar befire or after the surgery? These kids are so inspirational;)

[jaylenschallenge]

Tammytoe, until you've spent a day in the life of a child with Tourette's Syndrome, stop bullying Jonah's youtube page. You need to google search Jaylens Challenge and educate yourself on why people bully. Better yet, watch the documentary of our sons "Tourette's Uncovered" which was moved up to air 9/13/10 at 9pm on Discovery Health.

DerbyDaisy, nice to officially meet you! Friend us up on Facebook, Jaylen Arnold :)