Journey of Connective Tissue, Autoimmune disease, steroid treatment updates.

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Uploaded by on Dec 11, 2010

I'm still here. I haven't been able to do videos like I could in the past but wanted to give an update on the steroid effects as well as the illness. I hope everyone out there is doing as well as possible.
Michelle

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  • Hi Precious...It's been so long. Love you still 

  • Oh you poor thing. I feel so bad for you! I will pray you get better or at least have a normal life. Big big hugs, Tori

  • My poor girl! I am so sorry these steroids are hitting you so very hard! I hope you can get off of them and live somewhat a 'normal' life. Hugs!!!!

  • take vitamin d3 - research - it will help you - doctors wont tell y ou - be smart - you tube - d3 - start on 5,000 iu - get to 10,000iu. kyour blood levels should be 60 + IF YOU DON'T TAKE YOUR D3 - YOU WILL NOT SURVIVE LONG.

  • you are so wonderful i was like that the same way you are went through the same challenges and i am doing better now... i had to go through so so many meds and did chemo and chemo helped me A LOT! i thank God everyday for giving me another change to be here with my daughter...I really hope you get better.. xoxo

  • i'm so sorry michelle stay strong..... I hope you are seeing results with your antibiotic therapy...I'm also recently diagnosed with a connective tissue disorder most likely MS. I refuse to take steroids. I've told doctors unless its life or death i'm not taking them... Prayers going your way!!

  • you are a strong lady. i have been in and out of ER. i was in so much pain i could not control it, when the doctor told me i had to so back to steroids i cried likei was going to die. i know all the side affects from all meds cuz i was once one 20. i am now on maybe 7. thank you for saying that predisone is evil with our looks but it does kinda help with the sickness. peace and keep healthy

  • I have had SLE Lupus since I was 13 and lost my kidneys from it at 16. I have had 2 kidney transplants since and I am 38 now. Luckily I am doing pretty good but am still on steroids and will be for the rest of my life, every day is a struggle but keep your chin up.I will say a prayer for you.

  • My daughter is 45 and was diagnosed with Pulmonary Fibrosis, Scleroderma, and Raynauds. She just found out yesterday that she does not qualify for a double lung transplant because of the scleroderma. She however, does not have all the symptoms of schleroderma so her doctor won't make that diagnosis of either schleroderma or sjogrens. She has been given 1-2 years my e-mail address is ander164@q.com if anyone wants to comment. Pray for us.

  • God Bless you sweetheart for doing this Video.

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