News from 1995 showing California family fighting to get help for severely autistic son who also has rare severe type of self injurious behavioral disorder. Skin shock therapy ordered by doctors to...
News from 1995 showing California family fighting to get help for severely autistic son who also has rare severe type of self injurious behavioral disorder. Skin shock therapy ordered by doctors to protect child....part of problem was family was never given proper support. Respite providers were people respite agencies hired off street and trained for one week. This child's condition stumped and baffled agencies and bureacrats. To this day, they still don't really understand how complex this type of autism and behavior is....it takes a consistent round the clock support staff highly trained to meet the individuals needs and capable of handling the emotional and physical demands it takes to handle this type of autisitic person...very few people can handle this type of autistic student, patient, client, child....it also takes a certain personality. One of the hardest behavioral cases ever seen. Conventional behavioral therapies totally useless. Repeatedly failed to protect this child. Physical intervention to protect from severe bodily injury necessary. Multiple pro active behavioral interventions including hydrotherapy, massage, car rides, etc..do help calm this type of autistic person but you can't implement those in government run programs....simply not practical they aren't available...you'd have to have a hot tub in the classroom for immediate access when the child went into a severe self injurious attack....ideas, visions and typical ways of doing things goes out the window in a case like this....you have to constantly improvise and adapt..think outside the box...there are no places and few professionals for autistic children like this...they take one look at this case and run. Only ONE special education placement has ever protected him and allowed him to enjoy a free and public education and that was only after he was assigned a school LVN to help monitor his complex, behavioral medical issues.....
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Why don't they look into what is causing him so much distress? Look at look at little Jamie's face, something is cleary distressing him. Perhaps his clothes are too strachy, perhaps a noise is too lound or agraviting to him, etc..
I don't see these "professionals" comming up with any better solutions, they cry inhumane, in my eyes inhumane is taking away the only treatment that works and offering nothing useful in exchange. A small shock, or a visit to the ER with broken bones, sounds like a no brainer to me.
There is a more powerful device than the SIBIS, much more powerful and its random (arm,leg,waist). However, from your videos, it appears mild restraint during periods of SIB seem to be helpful. I assume you guys have certainly had an FBA, perhaps too many to count. Is it realistic to use mild restraint in anticipation of triggers or does epileptic episodes make this unrealistic?
Jamey's SIB is fueled by multiple triggers that fluctuate as per his medical and neurological state...Example, SIB could follow seizure activity, but then suddenly laughing follows the seizure activity...it's like living on a roller coster......Mild restraint is helpful, there are times the SIB is so chronic the sound of another punch is like lighting in our brains, Our son can't help it. Once he gets going, he's like a record that gets stuck on the same song...It's very primitive behavior
Yeah, it makes our hearts ache so much with every blow! I know how your heart must feel,, and supposed to just get on with it.. my 2 yr old has copied her to our horror,, just tryin to teach him that its not normal behaviour!
Yes it is hit and miss, I've noticed that before... tried her drug free and it was a quick down hill for her....Mmm.. amazing that we can send people into space but no-one has come up with this devise.. amazing!!
Equally odd that America bailed out big buisness and spends billions investigating "life on other planets", but ignores the life on THIS planet...example: California cut funds to almost every agency serving elderly, sick and disabled and their families..and you'd think it's 2009! can someone make a n effective safe creative device that helps these autistic kids stop smashing their skulls to pieces?
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