Our Journey with Hydrocephalus

Robert was diagnosed with hydrocephalus at 19 weeks gestation. We were told he would have no quality of life if he even survived. We were told repeatedly to terminate the pregnancy. I prayed to God to take it in his hands and watch over my baby. Eight months and five brain surgeries later he is doing amazing!!! He can clap say mama, dada and baba. he is rolling and trying to lift his head while on his stomach. He has physical and occupational therapy and we are so greatful for all the help we have recieved to help my boy. Thanks for watching and i hope you enjoyed this video and it gives you hope in hard times.

Category:

People & Blogs

Tags:

• hydrocephalus;
• baby robert;
• inspirational;
• macrocephaly;

[angelbiter]

thanks everyone!! I appreciate all the good thoughts. Robert is doing amazin!!! I will update with a new video soon so everyone can see how good he is doing. Robert is now 17 months old and has learned how to sit and can hold his head very well. He is still not crawling but with his Physical therapy we are sure he will be doing so soon. He also has a helmet to help with the shape with his head. Since his hydrocephalus had made his head swell and his multiple surgeries he had a few flat spots.

[W0nd3rw0m4n]

Just a quick question. Do kids with this condition grow into their head (not meant to be offensive sorry if it does)? Just a question..

[angelbiter]

@W0nd3rw0m4n im not offended. you have no idea how many people are curious about that. i would rather people ask questions politely than make assumptions rudely. We believe that he will grow into his head. although the top of his head will always seem larger than normal. We wont be 100% sure until that time comes but either way he will be handsome and loved by many!! :)

[angelbiter]

if anyone wants to know about hydro or has any questions feel free

[mikeykarisniey]

i was also born with Hydrocephalus i hope and pray that the little guy does better every day i had 10 surgeries because of shunt malfunctions and other complications from a couple of weeks old to the time i was 4 years old i jus had my 11th about a week or two ago at age 20 because the shunt had broken directly under the pump....that little man is a fighter i hope things hav gone well since you posted this i applaud you for hangin in there i kno without my parents i wouldnt be where i am today

[TheJames1745]

Love you, buddy! Stay strong.

[kemoshea713]

Look at those beautiful baby blues! What a cutie! It's nice to hear he's doing so well.  :)

[disneydanny2]

your hydrocephalus jiourney sounds ALOT like mine. I was born 7 wks early. on tje 1st attempt at putting my shunt in i coded but came out of it ok. i've had 2 replacements since then (the most recent being this past January. When I was born the Dr.s thought i'd never walk or talk but i fooled them all!

[mjoysmith81]

God Bless you all -3

[MultiDominator16]

@angelbiter my son to had the same thing he will be two in 16 days he did everything much much later but there is hope so glad your baby boy is doing amazing

[MultiDominator16]

@W0nd3rw0m4n My son has grow into his head :) so yes they do but his head does appear larger in some spots

[rebar351]

My dad actually has hydrocephalus so I definitely understand your journey. God Bless

[damnshebad691]

AWW him toe cute (baby talk)

[keyscowboy]

Thank you for this video. Uplifting.. God bless you both and Robert.