Real Life Living with Ehlers-Danlos Syndrome Episode 3

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Uploaded by on Apr 22, 2009

This episode includes my upper neck surgery. It shows the pre-op testing, before surgery and post-op!

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Uploader Comments (angelEDSer)

  • after my surgery on my sholder i was wicked loopy in post op. & i guess i swore at all the nurses! and i guess my language was very colorfull.. oops?

    i have eds as well

  • I believe it. With all the meds they pump you with, anything is likely to happen.

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  • I have EDS but it's not as bad as i thought from some of the videos ive watched. I dislocated my right arm about 3 years ago but never knew about it until the 2nd year. It was the radial head. I live with it everyday and doctors say it cant be fixed right now. Yesterday i realized i dislocated very sligthly my ulna of my elbow on the left arm recently. I'm going to get that fixed soon. It's terrifying to me but i think that even though I have this Im not going to stop fighting for a normal life.

  • I have EDS/ Hypermobility syndrome and i'm 14!

    R.I.P. To archie :(...he was adorable

    Good luck for the furture and hope your pain calms donw abit in your neck!

    xx

  • Hello, fellow EDSer here... I hope you're starting to feel more human and less pain. I had knee surgery in February. My surgeon thought I would be up and walking in about 8 wks with no crutches or anything. I went back in on March 31 for an exam under anesthesia to have it checked out to make sure nothing was wrong and to break up scar tissue, since I was in excruciating pain and PT wasn't going well. I'm still walking with a cane... ugh. Hang in there. Sending positive, healing energy your way.

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