LALupusLady goes to Capitol Hill

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Uploaded by on Mar 8, 2008

Lupus patient/advocate LALupusLady goes to Capiotl Hill, Washington, DC to speak with members of Congress about Lupus Research.

http://www.niams.nih.gov/about_us/Mission_and_Purpose/lupus_plan_intro.asp

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Uploader Comments (LALupusLady)

  • Hi, I have SLE and have to be on dialysis. I am currently on the kidney list. Thanks for doing what you do for the people with Lupus. Your AWESOME!!! I was diagnosed 4 years ago and recently a friend of mine was diagnosed with it 2 weeks ago.

  • I appreciate your support. I've had Lupus for 25+ years and still going strong, well still going anyway - be strong and know that we are united together to fund research and support patient outreach services & to find new medications and a cure for Lupus soon.

  • I'm glad it went well!!

  • The day was great & an added bonus, a picture of me with California's Senator Barbara Boxer is featured in the monthly National LRI email.

    I am so happy by this honor.

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All Comments (9)

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  • Great video! Love your enthusiasm

  • Thank You Jesus!

  • I don't know if you know about stem cells to treat Lupus somewhere in a hospital in Chicago. I was wondering if you knew because I'm really curious about that. I really admire you and I'm sure there are so much more people out there that feels the same way as I do. Please keep doing what you do and how can I get more involved?

  • Great and informative video.  You look good and taught me about Lupus. Thanks!

  • Hi, I LOVE that you got to go to DC. I have severe SLE and right now..well it's acting up so after a lot of thought and prayers I am about to do something to get the word out. I figure if someone can do an "experiment" with their telephone number just to see how many calls they can get then I can do it in order to raise Money and awareness for all of us "LUPIES". Much Love and Prayers~~Josie Kay~~

  • Good to hear it went well. I'm glad there's a future in finding a solution to this illness. And a future for people who have it when the solution is found.

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