Waterproof

Intracranial Hypertension (previously known as Pseudotumor Cerebri) is a neurological disorder that i was diagnosed with at the age of 9 years old. It has affected my life so much that i wasn't even able to attend school for 2 years because of the daily headaches and pain it puts me through. Finally this year, i have been able to go back to doing half days at school and being able to have more of a "normal teenage life". This song, that you hear playing in the video is an original of mine called Waterproof that i wrote about a year ago, about my battle with IH. There are so many people out there suffering from IH, however, it is still an uncured disorder. I have been creating my own IH website to raise awareness for IH, so please visit http://www.theihproject.com for more info. It is still in the construction process so remember to keep checking back as I will be adding more to it soon! Thank you for your support :)

Category:

Entertainment

Tags:

• Waterproof
• Intracranial
• Hypertension
• Pseudotumor
• Cerebri

[farmgirl81234]

wait....whos talking??? who has it???

[hilandmileyfan]

I do. My name is Kayla, i'm the person that wrote and sang this song and i'm the founder of The IH Project :)

[Kbblc]

y does it say water proof

[hilandmileyfan]

Waterproof is the name of my song that is playing.

[SavyLovesCake]

i dont understand...

[hilandmileyfan]

what don't you understand?

[IHateIH]

Kayla, I JUST got a new PC with sound and got to hear this for the first time. I knew you were an amazing person, but you are a truly amazing and sweet soul that touched my heart with your song and with the pics of all of us that you shared. I am proud to have been one of the ones who had their pics chosen for you to use. Thanks for including me in such a meaningful and wonderfully done project. You rock!! ~Leslie O.

[BeckaJane1000]

this video made me cry..

[kbenge89]

I'm 20 and I was diagnosed with IH on April 28th, 2010. LP pressure was at 36. They've got me on zonisamide and diamox. My headaches and slowly easing up and I'm feeling better with each passing day. I've lost 20lbs with the help of the anti-seizure med (zonisamide). It's such a hard thing to deal with b/c no one understand how bad you feel. Thanks for making these videos. Lovely song, btw. :] I'm glad to hear you're recovering.

[mrsondesko]

I like this song my life changed in the fall of 2002 I got the worst haedach you could ever get and it just will not go away I have gotten the right nerv in my eye cut to releive presure I can see alot better but the headachs are still their I take like 30 differnt kinds of meds in the am and then the same in the pm I have 3 shunts in 2 in my head and one on my spine I was told that I am one of the cranit casees I just want to be able to clean my house like a normal person I see a DR every day

[Bruce12789]

now i understand IH thank you verymuch

[Bruce12789]

that very touching but i dont really understand IH but i do understand wat it is like to lose someone u love to a horrible desise i am 13 years old and i lost my aunt and my grandpa who i love more than anyone else in the world to lukimia he was everything to me and i cant w8 to meet him in heaven. i love this song and you need to keep making them and u should go on american idle and have ur big break i love ya and keep posting plz plz plz

[xbitch83]

I know what you are going through. I was diagnossed 2 years ago. Last november I got a LPdrain and now i am doing much better. My life will never be the same as before and i will always have a headage, but I am able to dream again...

[Onlygodknows890]

this is a really nce song

[xSunshineStarshinex]

I'm really sorry. It must be tough.

-Claire x