Broken Nights and Lost Days: Inside World of Severe Autism

Warning: Severe behaviors shown. 2009 footage of California family raising complex, yet HOPEFUL case of severe autism and self-injurious behaviors. Extremely challenging situation requiring specialized care and expertise. Few experts understand this kind of autism.

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[cyclenut]

I am high functioning autistic. Sometimes I am like him, but not for long periods. Usally during high stress or abuse, but sometimes out of no where. My world shrinks and I tend to focus on things - staring- then hitting myself or other self abuse. Once in that state it is hard to pull out of, I have to let it go through the cycle.

I don't know about your son, but for me - drugs make everything worse.

For me, I hear words, but they are not a direct route to my thinking mind.

Bless your family

[CDFoakley]

@cyclenut Interesting insight thank you.

[SuperMissblueeyes]

I'm shocked at the behaviour of drs & nurses in some of your posts & that they've left you struggling for so long with no answers for Jamey's physical pain. I've worked with people with autism, am studying for a degree in health & social care (I'm about to begin my 5th year), & I'm currently doing a course on autism. Have you tried anti-depressants like venlafaxine? The thing about that group of drugs is that they're also great for anxiety. Just a thought, it may help until you get answers.

[CDFoakley]

@SuperMissblueeyes Effexor is actually a good drug but with autism and seizures it can lower seizure threshold. I considered re introducing effexor at lower dose if we couldn't get self abuse lowered. However, nicotine patch has been the best bet so far...we'll see.

[prw3535]

I agree with Dr. Krigsman, or Dr. Bock or Dr. K in LA, Jenny McCarthy's biomed doctor. Biomed can help your son, you are right about his gut. You are right to be pissed for 17yrs of no answers. Biomed should give you some.

ps, lamictal just was studied and linked with seeping folate from the brain, maybe that is why he is hitting his head?

[CDFoakley]

@prw3535 I'm sure McCarthy's doctor is excellent and I agree with all that stuff, but it's hard to relate to her case. Her son appears very different than my son, and others with severe autism, as far as the behavioral issues go. But yes, I agree, with a lot of what she says regarding alternative ways to treat autism, as conventional methods seem largely ineffective for many autistics.

[CDFoakley]

@RobinManning23 UMMM. Robin, dear, I'm a bit confused. Your profile says you are a SCHOOL COUNSELOR? Please tell us you aren't counseling people to ask their moms to kill them. Maybe U said this out of frustration? I don't think U mean this. See other videos where same autistic person is happy, thriving. It's not always bad with autism. There are good days. Amazing moments.

[casey15ification]

It's possible he has that and since he's non verbal he just can't tell you his ears are hurting. I have this and the constant ringing and the loud noises combined kills and when I have a meltdown i hit my head alot to because i'm trying to make it stop! Tinnitus is constant so maybe thats why. I don't know but I think its something worth looking into. I really hope it helps you guys out. also does he or could he have sensory intergration disorder?

[marley924811]

@CDFoakley I've been watching your videos for quite some time as I was looking for people who were dealing with the same thing that I am with my son. I am amazed at your courage to deal with this everyday and you are honestly an inspiration for me to keep trying and pushing through the daily struggles I have with my autistic son. Thank you so much! Do you take part in any type of support group? I'd love to hear what kind of insight you have into this and any tips would be great:)

[aureliefregeau]

Do you usually like the boxing cap on at night as prevention measures?

[smasherhits]

Get him off the pharmacueticals for a start to help him

[smasherhits]

Is he on a Gluten (Wheat) and Casein (dairy) free diet?..That will help alot

[smasherhits]

This is most likely Vaccine induced damage..Let me guess he changed after his 3rd round of shots around 18 months?..My son did too..Needs Biomedical teatment and no Big Pharma bullshit..Group homes are no good..They've probaby been drugging him and vaccinating more with swine flu shot etc magnifying his issues even more....its insane..Detoxify him, Clear his guts give good bacteria..Do lots of Hyperbaric Oxygen therapy..Forget mainstream docs..they are cluless.You need a very good DAN Doctor 

[mdak91]

Get police-issue handcuffs, and try this method watch?v=Gvyq8zJtdow

I know it's cruel but he won't even be able to hurt his hands like that