Prader-Willi Syndrome

The day in the life of a little boy struggling with a life threatening birth defect called Prader-Willi syndrome in which he never feels full and could literally eat himself to death.

Category:

Education

Tags:

• Awareness
• hungry
• eat
• birth
• defect

[bkisme]

gastric bypass.

Then, if they decide to start eating a lot, the sensation of their stomach about to rip apart will outweigh the sensation of being full.

tough love. their condition is out of anyone's control and to keep them alive and healthy despite the pain of being full is what matters. :|

[vickylace19]

I don't think you understand. Individuals with PWS NEVER feel full thus gastric bypass is never recommended for individuals with PWS. They will continue to eat dispite the pain that's how strong the sensation is for them to continue eating. The hypothalamus is deffective thus the signal of "fullness" from the stomach to the brain doesn't exist. The tough love comes in by not giving in to their demands for food and keeping them on a low fat low calorie diet. Thanks for your comment.

[suspee101]

my niece is suffering from PWS and it has shocked me to bits....but by watching this video I felt that i must be strong and to look out for her for me to be a better uncle......

thank you for your video....your son SONNY will be a true inspiration to my niece and i hope for the best for you and Sonny...

[vickylace19]

Thank you so much and all the best to you, your niece and your family.

[squavers]

hi my names louise and my daughter laura died of pws at the age of 3 . Hope your son keeps doing well.

louise x

[vickylace19]

I am so sorry for your loss. My heart goes out to you.

All my best,

Nina

[June28July]

No, God is not the answer. MEDICAL SCIENCE is the answer.

[The77roses]

@vickylace19 so true. its not that thier stomach has an issue its the brain that does not work properly therefore no surgery will work.

[zsxdcftvybunm]

my sister is 23 and suffers from PWS, it looks like you're doing a really good job. stay strong :)

[bzylizzy]

gosh what a cute child, I wish you all the luck on your special journey with him.....

[SUSUM7]

thnk u 4 the video

it was very useful and interesting

[jack4cheese]

The day in the life of a little boy struggling with a life threatening birth defect called Prader-Willi syndrome... vickylace19 — 26 April 2008 — The day in the life of a little boy struggling with a life threatening birth defect called Prader-Willi syndrome in which he never feels full and could literally eat himself to death

[bmw4infinity]

my baby girl has pwc 2 years she was so cute but alwayes hungry we start the treatmen with growth hormone any one use this groth iam always worry how her future will become she can go university she can marry she can have a baby she become very fat no one know i hope all pray for this baby

[moviekid1012345]

I might have PWS, they diagnosed me when I was a baby, but it came back negative, until now. So this was a really big help. Thank you! :)

[123argaet]

Thank you for this video. My brother has PWS. He is 22 and at the moment living a very nomal happy life. He is gettin bigger day by day, and this scares me more than I can explain. I cant do anything for him, but your video has made me realise that there are more people out there that share this terrible disease.

[jms5353]

I became introduced to this syndrome when I started working in special ed as a teacher aide. The young man I worked one on one with had it as well as severe mental impairments. Now that I am a teacher I work one on one with him from time to time. His family struggles to keep him safe n on a diet as well. It is very tough for him. I know this because I can see it in his eyes...he is nonverbal. I wish your son n family the best you have a very special young man..he is strong