Sierra & Rett Syndrome

Sierra is now 4 yrs old and has Rett Syndrome. Thats her twin brother in the picture. They started out developmentally at the same level but the gap started growing between them. Rett Syndrome is a neurological disorder that causes severe regression and loss of gross and fine motor skills, speech, and causes a host of medical problems like seizures, scoliosis, reflux, and GI problems. It is often misdiagnosed as CP or autism. There is no cure.

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• rett
• syndrome
• autism
• cerebral
• palsy
• OneTrueMedia

[bfarnu]

Hi , she is beautiful. Our little angels can shine thru so much eh? is this the same Sierra that said you had positive results from ABA on Rettnet??

Thanks, our daughter has RS as well and would love to talk to you about ABA.

Take care, the Farnums

[laineyful]

Thanks...yes she is that Sierra and is doing great with ABA! I would love to talk about it more with you! You can email me through the Rettnet and I can tell you more.

Thanks for posting!

[TheBeckstar3]

Amazing, she is such a beautiful girl, what a cutie!!!

[tracyleerose]

Enjoyable video, Rett girls are so pretty. Thanks for sharing

[SALAINEN49]

@Expremium My daughter Maija ( lives in Helsinki, Finland )is born on 1979. So she is now 32 years old.

She has mutation on the gene MECP2 identified.

I wish all the Rett-families courage

[crazycatlady68]

Stay strong everyone..I work with a 35 yr old woman with Retts that walks ( assisted with AFOs) and eats on her own..Stay true to them,love them and support them..

[Dawoudkhalifa]

God bless u, i hope she is doing well and have a happy life.

[0theshorthalf0]

Rett's syndrome is a pervasive developmental disorder, usually characterised by development of multiple deficits after a period of normal development. It can cause a lot of problems with movement and motor skills, and also with language development. The video description explains what Rett's is, too.

[Zeptorr]

Makes ur penis grow

[auti34]

what rett syndrom