Childhood Cancer our journey! Ewing's Sarcoma

February 1st 2007 our lives were changed forever. Our 15 year old daughter Nicolette (Nikki) was diagnosed with ewings sarcoma. For about 6 months Nikki was complaining of lower back pain off and on. The pain would go away with Motrin and sometimes be gone for a few weeks at a time so the doctor said to stop doing sit ups (she did 100 a day) and not to run on the treadmill and see what happens. Then on Feb.1st she said the pain was so bad she can't sit in the chairs at school. That morning I took her back to the doctor and she sent us for a MRI that day. A few hours later the phone rang with the doctor telling us to pack a bag and get to Children's Memorial Hospital that something was seen on the MRI. Since that day she has had several procedures, scans, MRI, and biopsy. Due to the location in her spine it is inoperable. She has completed 9 rounds of chemotherapy out of 14 all inpatient and she has just finished 31 radiation treatments. She loves shopping, listen to Bob Dylan, and horseback riding. Her older sister is her best friend and as she says her 2 younger sisters are annoying. Nikki is an inspiration to all of us with her strength and her constant negotiations with the doctor to move chemo for a week or two due to what she calls more important things. They gave in this time so she could start her Junior year but it's going to be the last time. As with all these amazing kids life has been a roller coaster this past year in and out of the hospital, low counts, fevers,complications from radiation and the list goes on and so do we! Our kids give us the strength to get out of bed everyday. They have every reason in the world to complain and stay in bed but all they care about is getting to the mall or going to school that's the last thing they want to do is lay around another day. God has given us our special ANGELS to teach us all a lesson. Live everyday to it's fullest and never give in because they sure as heck aren't going to :-)

Category:

People & Blogs

Tags:

• childhood
• cancer
• ewing's
• sarcoma

[gonikki501]

Follow Nikki's 3+ year journey with Ewing's Sarcoma at

[gonikki501]

carepages website

nikkiweinberg is the page name no space

[ghostrid3]

status update?

[gonikki501]

@ghostrid3

[gonikki501]

@gonikki501

[lebanator1]

i lost my 20yr lil brother from ewings sarcoma :( i just found this page on 1 of his favourites on his youtube acount

[chandler907]

Did she beat her cancer?

[cayelizpark]

My sister got diagnosed with Ewing Sarcoma at 15 too. Shes still here and I thank god every day but, her lung function has gotten worse but, all you have to do is keep faith

[mera20javier]

i have ewing sarcoma and life goes on with god ;)

[shawnmccori]

I have my cancer back. It was ewings before. I guess as a 30 year old I will find out if it is the same type as before. I grew new teeth too lol associated with it LOL.

[floriceeel]

I survived this thing and 10 years have passed since then.i have huge scar and a missing rib.hope you'll be ok.be brave and happy for every moment of your life

[Havremark]

Im also a survivor from Ewings Sarcoma... I hope the best for all!

[Emeraldaze]

Thank u 4 posting this! What a brave & beautiful girl! My 9yr old daughter was diagnosed w/ ewing sarcoma on 1-5-11, she's had 9 of 14 rounds of chemo & recovered from surgery. Her tumor was about the size of a football & grew from soft tissue between her ribs into her right chest cavity & metasisised in her left lung. She's also remained brave & continues 2 b a fiesty little spitfire through complications & horrible side effects of treatment! She keeps me going! I pray 4 ur health & happiness!

[RachelTaylor63]

My daughter, Brandy Lynette Reid, died with Ewing Sarcoma Cancer at the age of 19 after stuggling with it for 18 months. She had 6 tumors when diagnosed. After treatments they were all gone except a portion of the mass in her pelvis. Within 2 months it all returned. The one on the brain controlled her emotions. Thru it all I that unconditional love is the greatess love of all!!! I pray that there will be more studies done!! 9/22/89-2/7/2009 R.I.P. Brandy Mom loves you!! It's still hard.