POTS - 18 months later - 5 hours after meds.
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Uploader Comments (simbofats)
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I have celiac & autoimmune, neuropathy, h-pots, hypovolemia. U r on a potpourri of meds. Could be making matters worse. Better to figure out ur catecholamines & BVA & find the right few drugs & tweak doses. Ur pots is severe like mine. The watch gives me confidence in dx not tx. What abt clonidine? Write me if you want.
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people should check for any food intolerance and any possible nutricional deficiency.
Some people withe celiac have this problem and will be solved with a gluten free diet. it´s worth to check that possibility
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what meds you on
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Lots... Verapamil, Florinef, Desmopressin, Midodrine and Mestinon. The Midodrine and Mestinon only last a couple of hours which is why the heart rate rise in this video is significantly higher than that in the other one ("90 minutes after meds"). Unfortunately, some of the side effects are worse than some of the symptoms they alleviate. It's lots of trial and error, mostly error. Dinet.org helps.
simbofats 1 year ago