Sydney's Hemangiomas Laser Treatments and Propranolol
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Uploaded by JEREMYABRAMSON on May 31, 2010
Our daughter, Sydney, was born with segmental hemangiomas. We met with 10 doctors prior to meeting Dr. Waner, none of them knew what to do about the birthmarks Sydney had.
Dr. Waner diagnosed Sydney within seconds of meeting her, and recommended a course of treatment contrary to the popular "wait
and see" approach.
We could tell right away that we found the right guy to take care of our baby. We put complete faith in Dr. Waner and entrusted our daughter's life to
him.
Dr. Waner coordinated with Drs. Blei, Presti, Hrdlika, and Steele, who we have come to refer to as the "Dream Team."
Sydney underwent 10 Laser treatments before she was 1 year old, and was on steroids for most of that time. The hemangiomas were present on both sides of her face, her neck and back, the majority of her right leg, and on her bottom as well. The hemangiomas were in her mouth and ears and
grew to obstruct nearly 60% of her airway.
Today, Sydney is a thriving 2½ year old little girl. Just by looking at her, you could imagine what she went thru.
Our family is forever indebted to Dr. Waner and the Dream Team for intervening early and saving Sydney's life.
Waner Children's Vascular Anomaly Foundation's website is http://www.wanerkids.org
The Vascular Birthmark Institute of New York's website is http://www.vbiny.org
Dr. Waner's facebook page is http://www.facebook.com/home.php#!/group.php?gid=67372539782&ref=ts please check it out and become a fan.
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Uploader Comments (JEREMYABRAMSON)
Video Responses
All Comments (31)
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amore di mamma ke dolcezza e tenerezza mi fanno ....poverina ke sofferenza ...ma almeno a vinto la battaglia...gioia
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She is darling, and Dr. Waner is magnificent! What a touching video!
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Great just great
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thank God she is ok, and God bless both of you
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god bless you guys
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this little girl is a doll! :)
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Awww your daughter is beautiful, xx
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She is a very happy girl
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sad i wish your daughter hadnt got hemangiomas!!=)
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Ela é linda <3
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Re: Propranolol- Its so important to note that Sydney had become steroid dependant. Every time we attempted to wean her off, the hemangiomas would quickly return to their state of rapid growth. She was therefore scheduled for surgical excision of the hemangioma growing behind her eyelid. As you will see in the video, her eyelid grew so large from the hemangioma, that its covering of her eye could have led to permanent blindness. (Continued below)
JEREMYABRAMSON 1 year ago
We were informed that twins in Europe with similar conditions as Sydney's, who were placed on Propranolol for high bp, had significant improvements and reductions in the growth of their hemangiomas.
Her cardiologist cleared her, and we were informed that if successful, she could avoid the surgery altogether.
Within hours of her first dose, we saw improvement. She was able to wean off of steroids, and eventually stop taking propranolol with no further issues.
JEREMYABRAMSON 1 year ago
Amazing!!! My daughter has 7 hemangiomas with the one on her gave being the worst. Syds story allows me to see light at the end of our tunnel. thank you for sharing. What a beautiful girl!
lynnieguzman 1 year ago
@lynnieguzman Thank you for your comment. Putting this montage together wasnt easy. We are happy that it has provided support for another family dealing with hemangiomas. All the best to your little girl for a complete and successful recovery. Please let me know if I can provide you with any of our resources. You can reach me by email at jeremyaa@aol.com
JEREMYABRAMSON 1 year ago
Judi N commented: ok, I totally balled my eyes out. This is a great video and it just makes me think that I wish I new how to get it out there more so more people could be helped with this condition. What list did you send it to? Did you send it to all the doctors you visited prior to finding the last doctor? Maybe her pediatrician could also send it out to their e-mail list. I will send it to Tenafly pediatrics as well.
Amazing, great job, beautiful song.
JEREMYABRAMSON 1 year ago