After My Third Remicade Treatment

This is right after the third treatment. In the other video I told all the side effects...it literally just wears me completely out. I took a lot of benadryl and it helped with the swelling of the throat, but it is impossible to keep all swelling away. I just got emotional, because a lot of people really just don't understand all that you are feeling and going through. I was alone at this time and not only felt bad physically, but was just overwhelmed emotionally with everything. Anytime I tell my story or anything that is going on I get all teary.

Category:

People & Blogs

Tags:

• Crohn's Disease
• Remicade

[leighd83]

I took it for 3 years before i started to become allergic to it. . A tip: sometimes people who are going to develop an allergy to the chemcials in the med are most often the people who feel bad after having the remicade. So pay attention to any changes in your body. read up on allergic reactions to remicade. They can be pretty bad.  It's probably not good for you to be alone after a treatment either. I'm here if you need to talk. - Leigh

[lindseypie100]

i have had 2 treatments but they did not work

[wafflesrule03]

I'm going for my 6th tomorrow...

[urusol]

why dont you try with LDN "LOW DOSE NALTREXONE" 

I am with LDN for anquilosing spondilitis and I feel really better !!!!!

good luck for all of us !!!!

[mrzelenak]

i feel your pain and all i can say: DO NOT GIVE UP THE FIGHT!

[mrzelenak]

n help you sleep with all those thoughts in my head nothing else was that helpful as the herb ) and didnt really care about nothing,especially about myself...lost everything what i was,but i got it back i boult myself back on top and do not let yourself down, just do not give up the fight enjoy your life try to find something what makes you happy and focus on it, god bless you and take care! i hear you!

[mrzelenak]

but all the way to the end im just finished my 4th remicade, im feeling brilliantly i have got good news im going to get back my body my life myself and i learn one really important thing - always look after number one : YOURSELF!!! unfortunatly we have got this illness i had 5 years in my life i thought about it as a punishment and it punished me everyday,i have got divorced, ruined me mentally, i start smoking weed ( the best pain killer and the best thing to use to get back your appetite

[mrzelenak]

because the british doctors would not care or put any afford in their work at all, or just been told by my surgent in england, that operation was a mistake, thanks mate, you just cut me up from my penis to my chest...put a bloody hoody on me and i would look like a sweatshirt...anyway, my first remicade absolutly runied me for days i was sleepy i was like a drug addict withdrawing i mean i wanted to go to the kitchen ended up in the bath room looking in the mirror what the hell im doing here..

[mrzelenak]

i didnt beleive that is the only way to live the rest of my life i came back to hungary went to see my old doctors and got the remicade treatment straight away, im facing a major op in december where the Hungarian doctors taking the stoma away and giving back my life my body and the chance to being normal again.thanks god i didnt believe the english doctors and fought my way thru.i do not know what would i do to myself if i`d wake up with pelvic nerve damage and stoma to the rest of my life

[mrzelenak]

my english doctor laughed at my hungarian doctor`s opinion and i did not get the remicade (biological ) treatment i went thru another 2 ops and been told to have a major op to close my rectum for good and gotta live my life with a stoma the op they wanted to carry out was that dangerous that pelvic nerve damage was its side effect.now i lost all my confidence, all the enjoyable ;art of life since that stoma and useless british doctors in St George`s hospital London i could not risk...and