IFOPA Promotional Video (Full Version)

The International FOP Association, Inc. (IFOPA) is a nonprofit support organization for families dealing with Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to help advance and support FOP research, education and advocacy, while giving membership a means to cope with the disease, both privately and publicly. Our membership currently spans 52 countries worldwide and includes FOP patients, as well as families, friends, medical professionals and more.

FOP is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles, tendons, ligaments, and other connective tissues. Bridges of extra bone develop across the joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone.

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Nonprofits & Activism

Tags:

• nonprofit
• ifopa
• fop

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