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Faces of Mitochondrial Disease - The Swinns

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Uploaded by on Oct 29, 2008

Chris and Mary Swinn and their daughter Emily describe what it is like to live with mitochondrial disease.

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Nonprofits & Activism

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  • i have mitochondrial disease i thank god every night and day for letting me live god has done a lot of things for me and i just dont know how to thank him

  • emily is beautiful . i have lost 2 most precious and beautiful girls ..... life will never be same again.... i miss them with every breath,,,, sadly i was in third world where very veryvery less info was available... emily reminded me of my second daughter .. so much resemblence..... strangely as a kid i lived near atlanta and back then in 84 i collected charity for jerry lewis for MD... not knowing my kids one day will have rare disease of same family...... will pray for u always .

  • AMAZING!

  • What a beautiful girl, and a beautiful family!

  • god Bless her she is Beautiful and i no ur faqmily and u Emily will be Strong Melissa

  • My niece has Mitochondrial disease-but her symptoms are completely different. She started having seizures at 5 mos that were uncontrollable-trying to find a reason for those they discovered the disease. She lives with epilepsy as a result and with very low muscle tone-which affects her walking and fine and gross motor skills. God bless your family and gives you strength.

  • My friend Maggie has Mito and there isn't a day that goes by that I don't have my UMDF braclet on.

  • Hi Emily,

    I have watched your video and everytime I cry wondering why such a beautiful girl has to be like this. I will pray to GOD for you.

  • We thought you would like to know Brianna Couture the girl in one of the video's on your site is critically ill in the ICU in Boston MA,  her friend started a page on facebook, called Support Brianna Couture. please send your love and support

  • Your daughter is beautiful! I also have a beautiful daughter with Mito. She had symptoms from birth. She is now 8 years old and doing amazingly well. I wish you luck with all of your struggles because as you know it is never ending. God bless you and your family

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