*PLEASE READ*
The findings will not be replicated in 'CFS'. Why? Psychiatry, the insurance industry, and corrupt government health agencies - namely, the CDC and British Department of Health (NHS)...
*PLEASE READ*
The findings will not be replicated in 'CFS'. Why? Psychiatry, the insurance industry, and corrupt government health agencies - namely, the CDC and British Department of Health (NHS). Both have stated that they will not replicate the findings BEFORE carrying out any research!!!!. Isn't that a little telling?
Simon Wessely on XMRV,( British DOH/NHS Psychiatrist, and self annointed 'CFS' expert who denies ME exists):
''"It's very preliminary and there no evidence to say this is relevant to the vast majority of people in the UK with the condition." On hearing the news, Wessely describes ME CFS as ''"It's a contentious area that lies somewhere between medicine and psychiatry,"
ME is actually a disease of the central nervous system, since 1969. World Health Organisation. ICD-10 G93.3
Presumably Wessely has developed senile dementia?
Another government stooge in charge of millions of Americans health at the Centre for Disease Control states on XMRV in CFS.....
Bill Reeves, Director of Public Health. ''If we validate it, great. My expectation is that we will not.
There are 9 different criteria for CFS, describing a state of just chronic fatigue. ME (CFIDS) is not Chronic Fatigue.
Nancy Klimas herself states on 'CFS' criteria the CDC use: ''The resulting guidelines are rife with ambiguity. Symptoms are counted either as present or absent, without regard to severity or frequency.''
Exactly Nancy.
When the CDC announce they cannot replicate the WPI study, then think about it. Testing negative for someone who doesn't have the symptoms of Lupus, does not mean a test for Lupus in not accurate! ( If the criteria for Lupus were so vague anyone can claim to have it, then a Lupus 'test' would never have been found).
This is exactly what has happened in ME - re-labelled as 'CFS'. CFS means nothing it means (literally) 'No Specific Symptoms'. How can a disease be 'No Specific Symptoms'? This is what the Oxford 1991 criteria on CFS, say though. Scandellous? You bet!
The CDC will use the Fukuda 94 CFS criteria . It was designed by government bureaucrats, not doctors now interested in XMRV research. They are hardly going to admit they have infected millions of Americans and the rest of the world are they?
The only way to repeat the study outside the WPI is to repeat the study with patients *as severely affected* who have pathalogical evidence of immune/nervous system dysfunction. (NKC Dysfunction/RN-aseL/Dysautonomia) and on-going infections. This after all, is what ME (Myalgic Encephalomyelitis is), which was re-branded as 'CFS' in a desperate attempt to bury it - along with the patients.
Nancy may be honest and on our side, yet Reeves and the CDC and Wessely in the UK, are not.
Wessely is in agreement patients with ME are ''disgusting'' and entitles his psychiatric papers as ''Same Whine - New Bottle''. Would someone so callous, suddenly decide to throw away all the hate, and come over to the people he had made his career on - by discrediting them?
No serious scientist can predict what there findings can be - unless they are designed to produce a pre-determined outcome. That is bad science,and morally corrupt.
Do not expect ANY government agency to replicate serious science.
They relabelled a disease of the nervous system, ME, to 'Chronic Fatigue Syndrome' in the first place, causing un-told suffering and misery, and of course deaths through suicide, neglect and cancer/heart disease and immune failure. Dr Cheney himself has seen many of his 'CFS' patients die.
If they do, who is going to pay? Can ANY government afford millions of infected people suing for damages? I think not.
Ask yourself how this is 'managed'? They will 'manage' the situation by including mentally ill people in their research who don't have CFS.
CFS/ME in the UK *Includes* mental illness. Oxford Criteria CFS, IS mental illness. CDC Criteria for CFS *Includes mental illness*
CFS is owned and invented by psychiatry. My dog can have CFS if it has 'no specific symptoms.
My dog can 'recover' on graded exercise and CBT - if there was never any EVIDENCE my dog had ME (re-labelled as CFS) in the first place. Dogs get better care than ME patients, they have the RSPCA (Royal Society for the Protection of Animals).
ME patients, have nothing.
Using the term 'CFS' to describe someone in a state of diastolic heart failure, with reduced T-Cell function and CNS damage - is about as wise as calling yourself the 'N' Word when you're an African and going to a KKK meeting.
The logical way to break free of psychiatric misdiagnosis is to test positive for XMRV and to use the new name described by the WPI in Nevada for ME (CFIDS).
XAND. X Associated Neuro-immune Disease
Let CFS people who are mentally ill keep the term CFS.
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The prospect of a potential diagnostic test is very exciting to me. (CFS)
I find the thoughts of someone being overwhelmed with joy at being diagnosed with a retrovirus rather funny and ironic, but an indication of how dismal it is to live with undiagnosed and grossly misunderstood illness.
Thank you for your measured and articulate respons, to the coordinated research and attention that CFIDS/ME is now receiving and great hope to what this means for advances in treating this illness.
Thank you for presenting this information and keeping us "grounded" out here in Stigma Land. It is good to know we are moving forward. Thank you for taking the time to present this in a clear and positive manner. There is so much "stuff" out there that is not clear and their is so little respect and relief.
If the illness doesn't get you, the collateral damge will. Keep talking to us, it means more than you can ever imagine.
By the way, Dr Klimas, you do make one point on which you made me smile quite a bit. You said that the Illness was being taken seriously these days. You apparently aren't in touch with the ME scene in the UK!!!
Hey, thanks so much for this video. Nice to see a female sounding smart and educating the public on 'science'. And the process of scientific discoveries includes repeating the studies, getting patients to be research participants, and then....we can get more data and come to more specific conclusions. Pure science and ethical researchers ROCK! Dr M
Autoshare makes certain YouTube activities public on the services you choose. Select only the services you are comfortable with - like Facebook, Twitter, or Google Reader - to let your friends know what you like on YouTube. You can turn Autoshare off at any time.
The prospect of a potential diagnostic test is very exciting to me. (CFS)
I find the thoughts of someone being overwhelmed with joy at being diagnosed with a retrovirus rather funny and ironic, but an indication of how dismal it is to live with undiagnosed and grossly misunderstood illness.
Thank you for your measured and articulate respons, to the coordinated research and attention that CFIDS/ME is now receiving and great hope to what this means for advances in treating this illness.
Gratefully, EKW in California (CFS Sufferer)
Thank you for presenting this information and keeping us "grounded" out here in Stigma Land. It is good to know we are moving forward. Thank you for taking the time to present this in a clear and positive manner. There is so much "stuff" out there that is not clear and their is so little respect and relief.
If the illness doesn't get you, the collateral damge will. Keep talking to us, it means more than you can ever imagine.
MM in the NEK (USA)