Shane Richie's BBC Lifeline Appeal for the Huntington's Disease Association

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Published on Sep 18, 2011 by

Eastenders Actor Shane Richie makes an appeal to raise funds for the Huntington's Disease Association - a charity for which Shane is Patron. Shane became involved in 2004 when Eastenders featured a character who was suffering from the incurable and degenerative illness. A viewer suffering from the disease wrote to Shane personally and he has since met her and they have become family friends. Shane now works to do all he can to help people affected by this hereditary neurological disorder, which slowly causes dementia and difficulties with speaking, swallowing and walking. The film features Richard who is the middle stages of the disease, and Matt who lost his father to the disease and knows that he too carries the gene. Matt talks about how, with the help of the Huntington's Disease Association, he is coming to terms with the fact he will also start showing symptoms at some point in the future.

To donate please go to the website http://www.hda.org.uk or call 0151 3315444. Or, if you'd like to post a donation please make your cheque payable to The Huntington's Disease Association and send it to The Huntington's Disease Association, Liverpool Science Park IC1,131 Mount Pleasant, Liverpool L3 5TF.

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Nonprofits & Activism

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  • Thank you Shane Richie

  • @Michelle12010 Michelle,picture the scene.A wife and mother of two is worried about some physical and personality changes in her husband.He becomes forgetful,twitchy,maybe even violent.What is going on?They see the doctor and after a number of months HD is diagnosed.A big shock to both of them,never even heard of it.He was brought up by a single mother who's dad done one years ago,even his mother never knew.Too late for any advice on having kids,they are already here.It happens,it could be you.

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All Comments (22)

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  • I get my results in 7 days..

  • why do they have to add incidental music it is distracting and fake

    the bbc now think that everything is an american soap(a form of entertainment) even real life((which is not)

  • The definitive test for HD didn't become available until 1993, therefore there are many familys, like mine, who already had children AND grandchildren before they knew what the condition was. It could easily be any one out there.

  • Some People have put some realy hurt full things on here . I hope from this people will get the FACTS right before they act .Im want to to be a mum and why should i let this stop me . Noone has the right to tell me what i can or cant do. Ive not been tested my dad has the gene ive known for some time and i dont hate him for giveing me live and i dont hate god i love him and hope he will help me. I thank god every day that i wake up healthy and well .

  • my husband has this disease,we have two lovely boys,age 24 & 21,their grandad died from this disease,( suicide) they are currently looking to have the test,which they are dreading!!!! they have my backing & hope they have my genes to help them through this terrible ordeal,xx

  • I have two cousins with the disease. My daughter is hoping to run the Northern Run half marathon in 2012 to raise money for research into Huntington

  • My 18 yr old son was just diagnosed with JHD, symptomatic since about age 5

    I am doing all I can to raise awareness

    THank you fo rhe awareness.

  • My 18 yr old son was just diagnosed with JHD, symptomatic since about age 5 :'(

    THank you fo rhe awareness. 

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