Fibro Hell Michelle, Thanking you for All Comments

Information from my life of pain to yours to help all of us.

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People & Blogs

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• pain pills

[letsjustdance]

This is the first video of yours, that I've seen It is linked on Fibroletters. Thanks for your honesty. I nearly hurt my neck nodding b/c you are so right! Seriously, though, WE do have to be honest, and OUT LOUD because we do need research, and we DO need to change people's minds, and God Help Us, but we DO HAVE TO EDUCATE OUR DOCTORS. They hate it, but they don't know so many things..and we LIVE it and our LIVES DEPEND ON IT. Thanks again, I subscribed...can't wait for the next update.

[mcertonio]

@letsjustdance do you mind if i post your respose on facebook & maybe my Art Show.

[mcertonio]

@letsjustdance ---Thanks Babe! best advice---if A Dr seems stupid---they are--RUN! LOL

[kgillin]

Thanks for updating us...keep the videos coming, Michelle. You make me cry, but you also give me hope. Recently, I tried to do SOMETHING to fill the emptiness of my life...I tried to volunteer at the local Humane Society...thinking I could just be with the animals, talking to them, petting them, but...what they wanted were able-bodied volunteers to do the hard work of keeping up all the cages, cleaning and such. I just couldn't physically do it. Very sad. Oh well. Take care for now.

[mcertonio]

@kgillin You have to Do your own thing BECause No one getd why we cant mwpke a schedule like Normal folks Lol!

[blueeyes314]

Merry Christmas Michele thanks for the video I haven't been the same in over 10years thats when my trouble started. I feel like I'm trapped in my pain body I swear,And tonight on a day thats suppose to be wonderful Im sitting her in my recliner on a heating pad. The doctors wont help and I'm so afraid by next year I will be in a wheel chair. I hate this life

[mcertonio]

@blueeyes314 -- What ever made you feel good in your old life--TRY TO DO if only for A hour! Me I love to sing and go to HAPPY HOUR! Do what want DO NOT CARE IF ANYONE JUDGES YOU!

[Rhondamarie00]

I am a christian and I do believe that God has helped me thru a lot of things but I don't have all the amswers. I respect that not everyone believes in God and I don't want that to put a barrier between me and my peers because we (people with chronic illnesses) need to stand together! Please check out my channel and watch my video "my life is a PAIN: living with fibromyalgia and chronic fatigue." Blessings, Rhonda

[Rhondamarie00]

THE IBS has gotten so bad... I actually know what it feels like to be constipated and have diahrrea at the same time! I know, it's a gross topic but it needs to be talked about! I'll be so backed up and eventually when I finally do go it will be followed by horrible diahrrea...just horrible! I don't have a B.M. every day. I can go for almost a week without one. I think if i could get regular it would help with my pain and fatigue but nothing seems to help and I've tried it all.

[Rhondamarie00]

It's comforting to hear someone actually talk so openly about our chronic illnesses, especially how it affects the bowel and bladder! I've wondered if what was going on with my bladder and bowel were "normal" for FMS/CFS?ME sufferers. I have such a shy/weak bladder. Takes forever for it to come out and when it does it just rickles forever and God forbid their be someone else in the restroom cuz then my bladder will just shut down. I've had IBS forver too....

[OnlyGeranium]

Wow......I sure can relate to you..especially today. I MADE myself take my lil dog out yesterday to her fav dog park so am whacked out today. I am soooo thankful that I have my dog to motivate me to 'move about' otherwise I would just lie in bed under my heating blanket.

I'm also alone and note that people REALLY don't want to be around especially when I'm in a Fibro flare-up. Love your paintings....keep on keepin on!

[jdmit75]

I have HIV and yes I totally agree this pain condition need more research. YES FIBRO IS WORSE THAN MY HIV PROBLEMS!

[jdmit75]

I am a 36 Yo male I wish I could hug you I was told I had fibro in 1992 and was told to just call it osteoarthritis sad then of corse most doctors wouldn't beleive it well now as of January 2012 I'm rediagnosed with fibro myalgia and more so myofascial pain syndrome. Please keep posting never stop you have given me a resolve I've never had.

[ardraneala]

wow....



[MARIELEVAMPYRE13]

HI MICHELLE, I WANTED TO THANK YOU FOR YOUR VIDEOS. I HAVE MANY HEALTH PROBLEMS I WAS NEVER SUPPOSE TO LIVE PAST AGE 18 IM NOW 28. I WAS DIAGNOSED WITH FIBRO 6 YEARS BUT I AM CURRENTLY NOT TAKING ANY PAIN MEDS. I AM ALSO BI POLAR, ADHD, EPLEPTIC AND HAVE ANXIETY DISORDERS. I HAVE NO MEDICAL INSURANCE AND CANT SEEM TO GET ANY HELP, IM ALSO TRYING TO GET DISABILITY AND THEY KEEP DENYING ME. YOU ARE COMPLETELY RIGHT ABOUT PEOPLE NO BELIEVEING HOW BAD YOU ARE. I AM CALLED A HYPOCONDRIAC

[Megpieballew]

Thanks for posting a new one!! Great to see you!! I like the way you represent the FM community!! Some say its harsh.... Well FM is harsh!! And after a while you get very sick and frustrated of having to explain it over and over to docs,, <3