Living with Lupus (segment from Set It Up, SPNN's teen-produced TV show)

Program: Set It Up 2009-2010
Youth Producers: Ekemini Jonathan and David Hoh
Producers: Nicola Pine, Andrea, Lehmann and Rachel Delange

Lupus and the Lupus Foundation of Minnesota were recently featured on Set It Up, an after-school, teen-produced, magazine-style TV show on the Saint Paul Neighborhood Network (SPNN).

Produced by youth producers Ekemini Jonathan and David Hoh, the Living with Lupus segment features Ekemini herself, as a teen living with lupus, and LFM's Vice President of Client Services Cheryl Como. The feature was designed to raise awareness of lupus through her experience and through facts presented by LFM.

It is our hope that media pieces produced by youth at SPNN will be used to engage the community and inspire change, said Mike Wassenaar, Executive Director of SPNN.

For more information on lupus, contact the Lupus Foundation of Minnesota at 952-746-5151 or 800-645-1131 or info@lupusmn.org.

Thanks to SPNN for allowing LFM to use this video!

Category:

Education

Tags:

• living with lupus
• lupus
• SPNN
• Lupus Foundation of Minnesota
• Cheryl Como
• Set It Up
• client services

[iAMcirca]

sounds just like me, im 15 and a guy, but i get the red rash on my face, im always tired, and i get pain alot, do u think i have it? and is there death ever with lupus, isent is one person for every 5 or somthing?

[LupusFoundationofMN]

@iAMcirca Thank you for your comment. Regarding your symptoms, I'd suggest you write them down and how they affect you and make an appt. to talk with your doctor. The diagnosis process can take time and there are a variety of things doctors look at -- medical and family history, symptoms and blood tests. As far as living with lupus, people learn to live with lupus in healthy ways thru management, doctors visits, support and treatment. (continued)

[modelnsinginme19]

Thank you for sharing this video...Awareness is so key...praying for a cure soon....I was diagnosed at 16 so I can relate to the girl in this video....hope she is doing well =)

[sbrighton24]

I have and I use to model and go to school and I don't want to do nothing nomore and don't want to model nomore and don't want to go to school nomore and I tell people I have lupus and people don't know what it is either but the sad thing I can't afford to go to the doctors and I went years without going to the doctors cause I couldn't afford going to the doctors.