Makily

This is a montage of the life of Makily. Makily is an almost 4 year old little girl living with Partial Trisomy 11/22 aka Emanuel Syndrome. It is a rare genetic disorder that causes many medical and developmental problems.

Due to the fact that Makily's problems are genetic (it's ingrained in her DNA) she will always have medical and developmental struggles.

To follow along with Makily's story you can visit:

http://www.mynewnormal.blogspot.com/

Category:

People & Blogs

Tags:

• Emanuel
• Syndrome
• Trisomy
• 22
• Partial
• 11
• genetic
• syndrome
• inspirational
• child

[my3littlei]

wow, my 11 year old has the same condition. It is hard work,but they make it so worthwhile with the love that they give,Makily has the same dark beautiful eyes that my son has.But what made this harder to watch was the song children from Robert Miles. The song was playing when i gave birth to him, spooky.

[patyrish]

that gave me chills! I would love to see pictures of your son!

[srnixdorf]

I too was given this: My parents were given several reports of my infant condition. And then the fear I might not come home alive, their was fear that.....hopeless.

But i made so much strides in my whole life.

I have meet other babies like me, and some not like me . They Can Pull Through!!!!!!!!!

[lisgenrome]

Such a beautiful, couragous little lady!

[1903desiree]

Wow what an amazingly beautiful story and an even more amazingly beautiful little girl. This video is precious. ( I would def change the music in the backround to Sara Evans "I could not ask for more") Put both together and tears everywhere (happy tears)

[seriousgirl87]

my son has a cerebral palsy, the doctors said that is physically and mentally retarded, I almost lost hope,. but I knew God will always be on our side,. I love the introduction of your video, excerpt from the bible, your story is very inspiring, never quit, love your child,. give them your unconditional love,. no matter what happen,.

"do not pity her"- this is very true, dont pity children with dissabilities, but learn from their conditions.

thank u for sharing your story with us.. ^^

[hippyable]

She sure was sent by God and your faith in God has made you stronger!

[purpleroses26]

my son passed away in 2008 of a genetic disorder and it is hard life without him i miss him

[joniandme]

What a precious baby girl...may God continue to richly bless you all...

[evewalleghost]

i love that song it's got a good beat i'll keep her in my prayers and on 5:28 were you said that you said it was impossible not to love her and you right i love her already sty strong i give you my best wishes

[mylovesofmylife]

Cute baby

[nadioula89]

@patyrish is she ok now???

[nadioula89]

is she ok now?

[clinda1972]

I don't speack english but I can say it:

« she's very cute!!!»

My daugther has trisomy 22 and her name is Julie-Anne. she has 11 years old.