*** As far as I know, this just made the mainstream news this week, BUT yet has been going on since the beginning of the 2011-2012 school year which started MONTHS ago. There is a REAL SERIOUS illness hitting public school teens in New York, and due to scummy doctors who will NOT release the cause of diagnosis and due to problems from the HIPPA privacy rule, the parents of the ill children are OUTRAGED. Here is a transcription below of the recent events...... *****
A parent of a Le Roy student who developed tic-like symptoms said his daughter was told she suffers from Conversion Disorder.
Don Miller said his daughter's doctor diagnosed her with the disorder.
Conversion Disorder is defined as a neurological disorder that can be brought on by stress with symptoms that include numbness, paralysis, and inability to speak.
The New York State Department of Health says since September, 12 girls in Le Roy suddenly developed tics. Some are so bad, they had to be pulled out of school and tutored at home.
Wednesday night, James Dupont attended a meeting at Le Roy Junior-Senior High School hoping to find some answers about what may be wrong with his daughter.
In the first week of December, his 17-year-old daughter suddenly developed tics, showing Tourette-like symptoms. But she isn't the only one.
"I worry about my daughter's future," says Dupont. "She's only 17. She can't even drive now... My daughter hasn't been able to go to school for a month because she's got this so bad."
Dupont hoped that the meeting with the New York State Department of Health would give him some answers, but he says he's more frustrated and confused than before.
"It's a tearjerker and it hits you in the gut at the same time. You feel frustrated and helpless because you don't know what you can do, and you're not getting any answers."
During the meeting, Gregory Young from the state health department said that all 12 girls had been diagnosed and are being treated. Dupont says that he knows of no such diagnosis.
"Want to know something? If my daughter had a diagnosis and I knew about it, and I would, as her parent, I would tell you that!"
Young told the audience of almost 200 parents and students that the diagnosis and cause of the mysterious illness could not be shared because of the HIPPA Privacy Rule.
"Anytime we deal with a small number of cases and a dozen is a small number in a small community, it's very easy for people to hear the diagnosis and tell people who that diagnosis belong to," says Young.
Dupont believes that the health department doesn't truly know what's going on.
"The girls all go to the same neurologist and there is no diagnosis," Dupont says. "They don't know what's causing it. That's why we're all here at this meeting. It's not getting any better, and they can't share a diagnosis because there is no diagnosis right now."
During the meeting, Young clarified that the cause has nothing to do with illegal drugs, legal drugs, environmental issues at the school or in the Le Roy community, or vaccines. He did say that stress could exacerbate the tics.
"Stressors can make these symptoms worse," Young says. "I'm not saying they're causing it, but I'm saying that it makes it worse."
Young also told the audience that tics are "not uncommon". He says that 4 to 24 percent of children ages 5 through 17 can develop tics, especially children who have Obsessive Compulsive Disorder or Attention Deficit Disorder. However, he did admit seeing it in so many girls and only in girls at the school was strange.
"Tics have a four to one male distribution, so it's much more common in males," he says.
He also stated that an environmental study was done at the high school and they found nothing abnormal.
Hearing about what the causes weren't was very frustrating for parents who wanted answers.
There was a heated exchange during the question and answer portion of the meeting, where an angry parent asked parents of girls with the tics to tell the rest of the parents whether there was a diagnosis or not. All the voices, about a half a dozen, yelled out "No!".
13WHAM spoke to a parent of a girl with the tic symptoms who did not wish to be named. He, too, told us that he did not get a diagnosis from doctors.
"There has to be more to it," says Dupont. "There has to be a cause, a common denominator. I always thought that we could get together with the families of the girls who have this and go through their daily routines and maybe find something that they've all done... Right now, they're giving her shots in the neck or muscle relaxers and that does help, but they're treating the symptoms not the cause."
Several concerned parents said that they left Wednesday night's meeting more nervous than they were before. They felt they weren't given enough answers.
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Interview with Teens Suffering from Mysterious Illnessby LeakSourceArchive22,683 views
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