My Life with Ehlers Danlos Syndrome

Visit my blog on EDS and POTS! I cover a range of topics including health and nutrition, natural treatments, western medicine, braces/splints, recipes, disability, and more! Ehlers-Danlos Syndrome is a rare genetic disorder, a defect in collagen production, that can be chronically painful & debilitating. Postural Orthostatic Tachycardia Syndrome (POTS) in someone with EDS is caused by lack of collagen in the blood vessels and can be debilitating as well, causing problems with blood pressure and heart rate, among other things. Help increase EDS and POTS awareness by passing this along! Peace & Love! http://DanielleDavisEDS.blogspot.com

Category:

People & Blogs

Tags:

• ehlers danlos
• EDS
• POTS
• collagen
• genetic disorder
• dysautonomia

[danthehempsmog]

You have nice breasts.

[spurcross]

@thebestsumoeva She's even cuter when you pull her knees over her head and behind her scapulae.

Ohh, sorry, that was dirty.

[Qt4life6179]

I have hypermobility type as well. I don't have POTS, I have some other complications though, medullary sponge kidney, arthritis, tendonitis, flat feet, raynauds, chronic fatigue, insensitivity to anesthetics, and a few others. Does anyone else have any of these related conditions?

[broadwaydiva37]

@natalsurf how can u ignore EDS? I haven't had a pain free day in 2 years and I tried to swim but I wasn't strong enough so I do water aerobics

[Phoaenix]

Hey, just got a diag of EDS a few weeks ago, was curious if you've made any progress with this since you posted the video. Arthrocholasia/POTS/etc is a hard battle... I've heard good things about increasing salt intake, your opinions?

[Phoaenix]

Hey, just got a diag of EDS a few weeks ago, was curious if you've made any progress with this since you posted the video. Arthrocholasia/POTS/etc is a hard battle... I've heard good things about increasing salt intake, your opinions?

[thebestsumoeva]

She is pretty

[EmilSM64]

Im glad i only have HMS..

[EDSguy1]

Thanks for the vid. I have EDS hypermobility. I used to be a vegetarian - before i was diagnosed. Considering that there is one study that recommends L Carnitine for EDS sufferers, being a vegetarian would make it more difficult to live with EDS and may lead to a greater degree of POTS. Meat is high in L Carnitine, but of course you can buy it as a supplement. I've just started taking it - 500mg - and decreased my meat intake. It seems to be giving me more energy.

[violetcatalyst]

my doctor whom diagnosed me with POTS in Johns Hopkins says there is a new high sodium diet therapy. I suggest checking it out.