movement disorder while sitting on couch

This clip was recorded may 08, a few weeks before my fourth and most recent surgery. It is a clip of my myoclonic jerks while at rest. This was my constant state at the time, although the jerks were a little aggravated by the fact that I was tired.

Category:

Education

Tags:

• health
• medicine
• movement
• disorder
• myoclonus
• myoclonic
• jerking

[mrbluenun]

Hi chloew90,

Hi and if it is possible, I hope you are better!

I have these sorts of jerky Myoclonic leg movements with both legs but mainly the left or right at one time. I have had it for 20 years. My stomach seems to spasm suddenly and this lifts my leg/s up and they drop down again, and it usually lasts for an hour or so.

I have not been to your site, yet so forgive me asking the obvious, are you Epileptic? I am and it stops me working. It stops me working.

mrbluenun

[chloew90]

@mrbluenun

Hi, thank you, I'm currently doing much better! I'm sorry you are experiencing myoclonus as well. I do not have epilepsy. The birth defect in my brain that was causing this normally causes epilepsy, but I did every test in the book and they never were able to officially diagnose me with epilepsy. Of course, I never actually had full seizures, just the jerking. I'm sorry you're not able to work; I hope you find help for your condition soon.

[DoooDaddXtC]

@chloew90 I had this start a few years ago, mild stomach and left arm/shoulder, now its just like your video! i sometimes feel like im having a heart attack from it! have you found anything that has brought relief, or makes the symptoms less? now it seems like its constant....with only hour(s) long breaks with no jerking........

[chloew90]

@DoooDaddXtC, The best thing, if you can, is to find the cause and address that. For me, it was caused by a birth defect in my brain, and after having surgery to remove it, I'm doing much better. I know it can be hard to find the cause, and I was lucky to find it for me in so short a time. My advice is don't give up, and keep looking for the right doctor. In the mean time, try to find things that make it worse (ex. stress, lack of sleep, caffeine, flashing lights) and try to avoid them.

[chloew90]

@DoooDaddXtC, The best thing, if you can, is to find the cause and address that. For me, it was caused by a birth defect in my brain, and after having surgery to remove it, I'm doing much better. I know it can be hard to find the cause, and I was lucky to find it for me in so short a time. My advice is don't give up, and keep looking for the right doctor. In the mean time, try to find things that make it worse (ex. stress, lack of sleep, caffeine) and try to avoid them.

[MsFleischy]

Hello, I am making a video for a class based on this condition, because I used to have it as well, would you mind if I used part of this video to show this condition to others? It will be posted on youtube when its done. But I totally understand if you do not want me to show it.

[chloew90]

@MsFleischy that's fine, I don't mind at all

[stracinsrt4]

You're a cute girl!

[chloew90]

@ThePropertyofJustice

no, they weren't laughing AT me, this was just a normal piece of everyday life, and we were just taking the video to show my doctor, while in the meantime we were just enjoying being together and laughing and having a good time and making light of things, like you learn to do when you have something strange wrong with you.

[tehshit5000]

just smoke some weed itl relax your muscles and make you better temperarily.

[TheDudeWhoLikesTacos]

i don't mean to offend you but this is very interesting. it just happens and its invoulontary? i don't have what you have but some times i'll catch my leg shaking up and down and i usaly dont even notice. and other times i'll find one of my arm muscles spazing. its looks like it really takes you by suprise. does it hurt when you jerk?

[z28chic]

It's so frustrating because I can't control these & the are REALLY hard jerks. Sometimes, my leg or arm will just jerk hard once out of nowhere then like 30 seconds later it'll jerk again like 5 times together in a row. Then it'll b my arm & it's like I'm tryin to dance layin down or something. I've hit myself in the face a few times but this last time was the worst. It left a knot on my cheek. I've also beat on my bf b4 :( I feel so back but he doesn't let it bother him tho :)

[z28chic]

I went to the dr & told him about how I jerk really hard, mainly it only happens when I'm trying to relax. My legs & arms r the highlight of the show but I also jerk in my neck & even stomach. My dr didn't seem 2 know what I meant when I said my stomach jerks, but you did it a few times. He told me I have random limb movement disorder which I've googled & it doesn't seem to line up with what happens 2 me. It's been going on for about 5 yrs now but it started as small twitches back then.

[UmatsuObossa]

I get those sometimes. But usually just one or two jerks and it stops. I would be so annoyed if it happened like yours. At least you have a good attitude. I guess it goes a long way. :3