NAIT - Neonatal Alloimmune Thrombocytopenia
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Uploaded by naitbabies on Feb 2, 2011
NAIT - Neonatal Alloimmune Thrombocytopenia
Uploader Comments (naitbabies)
All Comments (25)
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This video is amazing. We have 2 NAIT miracle babies. Our daughter was born, undiagnosed, in 2007 and platelets got to 5000 - miraculously, no ICH or bleeds. 2 weeks in ICU though. Our son was born in 2009 - treated pregnancy - platelet count of 60, 100% healthy. I've sent this link on to so many people. We are in Australia but nice to know that there's a NAIT community worldwide.
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i cries everyday thinking about the babies who affected by nait, they are the real fighter.. thank you for the support on the groups, thank you for the donor, and the video that way we can spread the awareness!!! im proud of all the mommies! and i love my little angel baby, Sean!
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Thnks to all the wonderful people who donate their platelets and plasma for IVIG you are stars, thanks to you our babies survive, i bet they dont realise how important they are! i love you all and thank you. annoyiing thing is as ive recieved IVIG and platlets i cant donate!!!!! silly rules
11 months ago 2
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This is touching I developed a disorder called ITP at 15 and now am almost 20 all of my children will suffer from this disorder the first few days of life but thankfully my obgyn says they won't have it for long I go through IVIG almost every month and have blood draws every week.my heart goes out to those who deal with this unexpectedly I know what its like
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I watch this EVERY DAY and yet I still cry, and get goosebumps I have been touched by this rare and deadly disease and know all to well the feeling of being helpless...I waited 3 days for my son to die, because thats what I was told would happen...Thank god for the doctor that took over for my son, HE SAVED HIS LIFE IVIG and blood and plasma doners saved my baby...
1 year ago 2
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EVERY day and EVERY minute I am reminded on how important awareness is. It is a scary day when even doctors are unaware :( and giving misguided advice. Our babies lives are at stake!!!
1 year ago 2
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I just have to say I love you guys and so proud of this video!!!
1 year ago 2
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I forgot to say that my son is perfect, thanks to GOD!!!
1 year ago 2
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our website button is now active and donations can be made in any currency, by Paypal, post or international bank transfer. And a big than you to those who have donated! xxx Naitbabies - saving babies lives xxx
naitbabies 9 months ago
Our website is now live!!
naitbabies 10 months ago
We have made this video to raise awareness and to show that there is treatment for this condition. Many of our members have had successful treated pregnancies. Yes it is stressful - we have a support group to help you through it. . Recent research has shown NAIT is not as rare as previously thought. No country prescreens for this condition although recent studies have shown that this is possible (some rarer conditions are screened for). Pre-natal screening should be standard and routine!!
naitbabies 1 year ago