Documentary Interview with 2 girls with CFS (chronic fatigue syndrome) by Dr Franky Dolan
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I've had CFS for 5.5yrs now. I understand what you're saying about using a shopping trolley to help you walk round the shop, people (even some doctors) not understanding what it really is like or the problems it causes, but I also understand about how it makes you appreciate the smallest things. I've always loved the winter, the cold has always refreshed me, but now I find that the cold on my face as I step out the door wakes me up. But my main concern at the moment is will it spoil Christmas?!
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@muddipuppy You guys are great! I'm older a single blonde, "acting."I may have triggered
or made the CFS worse, working full-time, teaching my beloved night classes at college. Then? Three or four hours of sleep....Finally, it caught up to me.I'm on Disability
now,Thank God. Applied for it citing my Meniere's Syndrome,vertigo,etc.I have never revealed my CFS to others ! I'm "young" to have such a small life! I think:Enjoy tiny triumphs!
Parents are in their late 80's and Do more. 11/11
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RIP Amberlin. We will always remember you!
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On Nov 8-9, 2011, The CFS Advisory Committee will meet in Washington,DC. This is the U.S. committee which reviews ME/CFS issues. We will be there. We will bring these two girls voices.They are no longer invisible! We are standing up for ME/CFS. And to you Amberlin -the beautiful young girl with glasses - We will miss your voice dearly! Thank you Franky for such a wonderful video! Marly Silverman, Founder, PANDORA.
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@094340 same here actually. I was told I had CFS for two years and I suffered like hell, then I found out I had Lyme and suffered like hell but at least im getting treatment finally. :)
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That was a great video. I am having an especially bad day today and this gives me strength. When you have this disease, I swear you can recognize it in a person's eyes-unless you are wearing sunglasses as I often do too.
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Most communities Christan or not are not aware of what is going on God is faithful and caring to be beyond peoples perceptions of what they thinking is. I am a Christain now my view is different about everything I use to be the most active person. Now I am thanking Him everyday in what I can do or not. One day at a time that what it takes. I am waiting for my doctor to send me to a specialist a Immune doctor. My IgG subclass is abnormal the CMV and EBV is active now. Hold on He cares for you all
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I am so glad I ran into your testimony I want to have a support group too. Where can I start.? This speak so much like me. I am thankful I can do somethings yet I rely on medication to get me going for a short time. Now I am thankful for the little things.
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THIS IS REAL. The symptoms ARE real. NO condition of CFS is psychological. If it is psychological it is most likely depression, IT IS NOT CFS. CFS is entirely PHYSICAL. Do not make our lives harder than it has to be. This is debhilitationg and isolating for most of us. When we say something, listen... Listen to exactly what we have to say. Because our symptoms and ailments are very complex.
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Ladies and gentlemen this video is the real deal. I have been struggling with CFS since I was 16. I went from being always active, always playing sports, nearly straight A's to not being able to get out of bed or walk up the stairs. This occured within a matter of months. The offset is still unclear. For those of you who do not believe these girls or do not believe in this illness...I can't even say how many times I've wanted to hit people in the face for being entirely unsupportive.
If you ever feel you are alone in this disease, you are not. As much as you are able, please share your story, share it with the pride of the warrior that you are. We are all standing behind you. We can turn private pain into public purpose. With love, Amberlin (the girl in the sunglasses)
muddipuppy 1 year ago 26
Truly a Invisible Disease.
This is important work. Thank you for sharing this interview!!!
smlovinglife 2 years ago 13