Procko Family - Duchenne - Save Our Son
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- 56 videosReligious Non-Belief
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this is a wonderful video and such a precious child. it really saddens me when innocent, mentally alert children go through something like DMD. i definately know what it feels like because my brother has DMD if anyone knows any individual who has went through spinal surgery with DMD please take a minute to contact me
thank you
wahidsafi 2 years ago
hey there how are you? it really saddens me to realize what happened to your wonderful brother, my brother has DMD as well and is 17 i was wondering whether your brother went through spinal surgery or not? thank you so much and im very sorry
RIP Jason
wahidsafi 2 years ago
hey there how are you? my brother has DMD as well and were considering whether we should go through spinal surgery or not please tell me how old your brother was when he went through it and how'd it go? how was the experience positive or negative? please reply asap thank you so much -)
wahidsafi 2 years ago
That would be really good of you to do that, my parents appreciate you being in contact. Could I have your email to send a photo of him to you?
moviemakingbanter 2 years ago
Your brother is beautiful. I watched your video the other day as well, (on Cure Duchenne"s site). It energized me more than ever to step up our collective fight. We have 3 weeks before climbing Mt. Rainier for all of the boys. If you would like to send me his photo, I would be glad to carry it to the summit with me and take his photo on top. Thanks for keeping up the good fight, we need you!! Sincerely, Bill, Evan's Dad
pbprocko 2 years ago
I feel very much for Evan and your family, My brother suffers from DMD and has recently undergone a spinal op because of the disease. He is still a little fighter. Take care. :) xx
Please watch my video of my brother with DMD. Click my name or go onto the Cure Duchenne website
moviemakingbanter 2 years ago
Dear Jaimie,
Thank you for your kind words during such a difficult time in your life. You and Jason are in our thoughts and prayers.
Bill and Kim Procko
pbprocko 2 years ago
Please don't ever give up on your faith. I just lost my brother last Monday night to DMD. He was 31 yrs old.. We loved him so much! I am so saddened by his loss but at the same time at ease because I know he is in heaven free from all the suffering. God gave us Jason for 31 long years. Enjoy every moment that you with your precious Evan. He is a special gift from above. God bless you and your family.
Jaimie Calhoun -Thomasville, Ga
techrad 2 years ago
If I could change places with your son, a total stranger that I am, I would do so in a heartbeat. That is how much your video touched my heart.
Evan is PRECIOUS and, having seen his parents on this video, I am so very happy Evan has the extraordinary Mom & Dad that he does. He deserves the best.
G-d bless you all.
smaexpress 3 years ago
very nice video
my 8 year old, victor also has dmd
mcsalcido 3 years ago