URINARY DIVERSION/NEOBLADDER
Uploader Comments (kdfb35)
All Comments (23)
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aaaah aaaah very love
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Thank you for sharing your story. I hope that you are well!!!
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Hi,
I'm hoping my urologist will look into this as an option for me! I have Bacterial Cystitis (I think) I've been on antibiotics most of the time for about 18months and I feel horrendous alot of the time. I have a neurogenic bladder and self catheterise at the moment.
Any advice is appreciated.
I hope you're doing better now x
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Beautiful woman you are.
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Kirst - that's the first time I've seen that video and it brings it all back to me - I can't imagine how we coped during that terrible time including those years of great suffering before the surgery... hope you are keeping well - Phil x
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theres two types of continent urinary diversion. The mitrofanof if i am not mistaken has to be catheterised to be emptied? my neo-bladder was reattached to my urethra, and I was able to void normally as before. However I now have a urostomy.
Hey its you phil, I just checked out your site and realized who it was :)
Hey you just live with it and get on don't you, no other choice. It would be nice if i had some sei decent care here, but I would have to leave nz :)
How are you doing now? everything ok with you?
kdfb35 1 year ago
Its now 9 weeks since i had my cystectomy and illeal conduit and am now the proud owner of a stoma and dodgy bags. Its been crap and ive had no end of trouble and im really hoping that im on the way up now. The surgery i breezed but got septic afterwards and have had in total over six weeks in hospital with other complications too. Would never have dreamed that it would be this hard. Recovery has been very hard!!
nancyreynard 2 years ago
Im sorry you have had such a rough time! Nine weeks is very early and it can take 6-9 months to fully recover in all ways. Once you physically recover you may find then you deal with a change in body image and other issues related to a serious surgery. Im now two years post op and it hasnt been a breeze but it does get easier, i dont regret the surgery as infection symptoms are more tolerable now.
Take it easy, dont push yourself , there is a light at the end of the tunnel :)
kdfb35 2 years ago
sorry to hear things havent went great so far. dont despair!! Im a 28 year old male, I had a neo bladder made in 2001, and it failed, I had a cystectomy and urostomy put in situ in 2005 when I was 23. It takes a while after having a stoma formed to find the right appliance (Bag). I have been through it all, if you would like to talk some more, or if I can be of any help, message me on youtube and I will give you my email. Keep positive, it will become a breeze!
deckywalsh1 2 years ago
Hi im confused :) U had a neobladder first and they left your native bladder then they gave u a cystectomy and an ileal conduit? Can I ask how ur neobladder failed and did u hav the catheterisable channel also or urethral? Was it a leaking issue and did u wear a bag with the leaking> sorri :)
kdfb35 2 years ago
Ok, in 2001 I had a cystectomy, they made a neo bladder which was attached to my urethra and I was able to urinate normally. In 2005 I had severe complications and the neo bladder was removed and I had an ileal conduit/urostomy done. I didnt have a catheterisable bladder, thats a mitrofanof.
deckywalsh1 2 years ago
Ok thanks deckywash:) This is what they call it here
I had the cystectomy with a neobladder formed and a catheterisable channel into the neobladder.
Yes it should be called a mitrofanoff as its the appendix, but the docs here reserve that for people with a native bladder and a catheterisable channel formed for emptying.
kdfb35 2 years ago