A Demonstration of Dysautonomia (POTS)
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Bless your heart I suffer from severe anxiety due to fibromyalgia and most days I'm bedridden. The fatigue and insomnia are so bad. I hope you at least get a good nights sleep. I will pray for you.
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thanks so much, you did this wonderfully
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Sweet how your dog put his paw on your arm at the end.
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THANK YOU!
This video will be so helpful to help others understand me.
Your monitor is very cool - how did you do that?
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what treatments have you tried? and has anything worked for you? i am 17 and have had it for ten years. I went to the Mayo Clinic at Rochecester MN last year to finally get diganosed. i live at a boarding school and no one understands anything, nothing has worked for me even the thing i have learned from the pain rehab clinic at Mayo. thanks for sharing this video. hopefully people will start to "see" our POTS and how it affects our lives.
theombligosx4 11 months ago
@theombligosx4 {{{{ gentle hugs }}}} I'm sorry you are having a challenging time especially at school. Sometimes, some of the treatments do work well and at other times nothing does seem to work. But I can say for the 30 years I 've lived with active episodes that for me it does seem to wax and wane. Don't give up hope, hun. dinet.org has some of the best info I have seen on the web & some really lovely members who I have found to be of tremendous help and comfort. Good luck.
CoolKarmaVideo 11 months ago
thanks for the demo. a lot of people dont understand what it's like living with POTS hopefully this will make them realize
FamilyOfThreeNow 11 months ago
@FamilyOfThreeNow -- Thank you for watching. And you are very welcome, it was my pleasure to help others with a life limiting illness try and explain what is going on inside and how it impacts our lives in ways they may be unable to apperceive. Good luck on your own healing journey.
CoolKarmaVideo 11 months ago
never thought I would learn more about my disorder from youtube than my own doctor. I have to thank you for you time and energy you spent making this video. I too have pots. Im a single mom just learning about the cause of my symptoms. it took doctors 4 years to find a reason and took way more than 4 doctors to listen. I have even lost friends, mad family members, lost a lover and a home but knowing there are others that cope with the same thing, makes each hour more doable.
thanks
sunkissedbecca 1 year ago
@sunkissedbecca -- you are very welcome. There is certainly an aspect of "loss" that comes with this and other life limiting illnesses. But I find that it also brings together some of the most amazing and strong pioneers and it is such a blessing to meet each of you and know that we are not alone on this path that we travel. Deep bow.
CoolKarmaVideo 1 year ago