Ehlers-Danlos Memorial Tribute
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@insanesticky Right because weed fixes aneurisms (I hope you sense my sarcasm because I'm laying it on pretty thick right now).
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@nycgoodfriend Bless You, NYC! I blew out tendons in my only good hand, opening a can of seet potatoes on Thanksgiving. Used to tease my brother cuz he blew out his knee while filing papers, at work. We must re-arrange our DNA. wayseerD333
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don't forget, for those who have types other than the vascular type, the labels are just labels, the disorder doesn't care about labels. Each type is diagnosed by the predominant features, but most types have some features from the other types. Don't assume a hypermobile patient isn't at risk for vascular issues. i am EDS III and i ended up in the ER with a broken artery. peace..
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Thanks for sharing....I met someone who has this tonight....I have a lot of respect for you and your son for fighting this...best wishes from my wife and I...
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Stay strong....Your fighting a brave battle...best wishes to you and your family...:)
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im 13... they think i have this. i know the vascular type is the only type that is deadly... but i'm scared anyhow
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insanesticky
Duck off, you try living with this!!
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i also have vascular type 4
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i'm 32 years old and i had a stroke lossing my left side of my body just lifting chars on my head an d i ruptured a vessel inmy neck that goues to my brain that caused me to have a stoke in my sleep. just thing it was just a headache and i went to sleep to wake not able to move my entire left side of my body
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Hi guys. I am 17 years old and was diagnosed with EDS when i was about 3. I have never met anyone with EDS before. Life kinda sucks that you cant play sports, but i just deal with it and have other hobbies i enjoy. I would appreciate a friend who also has EDS. Message me if you want. Mike
EkimKask 4 years ago 5
my son is 12years old and suffers with eds vascular. he has already had an artery rupture which led to his dominant arm been amputated, he has also suffered an artery tear in his groin. throughout all this he remains very strong in the respect of how serious his condition is. it's very frustrating at the minimal amount of doctors and specialists that know anything about this life threatening condition.
fizzandpaula 3 years ago 4