2 24 09 MOVIE Ally moving color wand - SMA Type 1

Ally has regained quite a bit of movement since she has started liquid albuterol 2/3 months ago and she has also been on hydroxyurea for 2 1/2 years. This is her playing with a fiber optic magic wand in the hospital recovering from RSV. I am amazed at how much she is moving it back and forth since it is pretty heavy. We only stabalized her elbow and the rest of the movement is hers. A few months back she was only squeezing her hand and had very little movement in her arms. She has Type 1 SMA and turned 3 years old on 2-2-09.

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• SMA

[believeanyway]

Must be doing something wrong. This is the third time of trying to post you a comment.

Love to the you Champion PRINCESS Ally. Pray you catch our hugz and kisses sent nightly at 9 pm while watching the moon and thinking of you.

XOXOXOXOXOXOXOXOXOXOXOXOXOXO

Although you are so far, you are in our hearts forever.

AZ Grandma and Grandpa

[believeanyway]

Hello Champion PRINCESS, ALLY!!!

I will be looking at the moon Nightly at 9 pm. Praying we are looking at it together.

Although you are so far, hope you catch our BIG Hugz and Kisses coming to you then. XOXOXOXOXOXOXOXOXOXOXOXO

Have not heard if you are out of the HS

or if you liked your birthday gift. Sure hope you are having fun and enjoying every single moment.

Love Forever

AZ Grandma and Grandpa

[JColleen77]

You are such a big girl Ally!!! You are so sweet and strong moving your wand!!! :) Love you little girl and I pray we can get you and Chloe together someday- you are a lot alike it seems!! ;)