Our son living with tourette syndrome

This video was posted for our doctors to share with their coleagues. This video was not shared to be ridiculed but to be used as a learning device.

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• tourette
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[TheLittletwitcher]

Aw he's so sweet :) Especially at the end when he spots you filming him and waves! How is he doing now if I may ask because I have never seen TS in such a young child before. (I have TS that's why I am interested)

[taragrin]

@TheLittletwitcher

Thanks for the kind words. Kai is now 8 and is very active. Super cute too! He still battles many tics almost daily. He seems to go in 6 week cycles. If things are good for a few days, we wait and pray that was the last one. But it just starts all over again with something new. His shaking isn't as severe as it used to be, the doctors have said it could be that he has learned at such a young ge to control his movements. They are amazed at well he does, school, friends etc.

[AngelBones84]

my 5 year old son , has TS , but the hardist thing for us is the Sever ADHA and ODD that came along with it . Its so hard to know how to deciplin him bc sometimes times its hard to know what he can help and what he cant . Is this something that you deal with also ? I have never been able to talk with other mothers of children with TS and sometimes I feel very lost .

[taragrin]

@AngelBones84 All comments need to be approved by me and I usually don't respond. I felt the need to stop and reply to yours. I felt so lost when our son was diagnosed. We don't deal with ADHD but we do deal with ODD, OCD, Hypersensitivity and many other "fun" things. Have you found the TS help forums yet? It got me through the beginning until I had a better understanding of what I was dealing with. Add me as a friend and I can send more info

[snikyma]

Our daughter Portia has been diagnosed with Tourettes too. And she also has Aspergers Syndrome. You can see our videos by typing snikyma in the search box. The doctor she sees put her on a small amount of Prozac, and it has helped with her tics tremendously. Tenex, Clonodine - worked but broke her out, and Zoloft...