Congenital Diaphragmatic Hernia Part 2

No description available.

Category:

Science & Technology

Tags:

• CDH2

[AlaskanTeacher]

I see that you're trying to be upbeat, I suppose, with this video...was this put together by doctors or by parents of a cdh baby? Because I have to say, this birth defect is very serious and emotional and your video comes off as, well, tacky. And what in the world was the PING??? I'm giving you my input as the mother of a surviving cdh baby. I'm actually glad I did not come across this video when I was pregnant and diagnosed because it would have upset me even more.

[owenrilla]

I appreciate your comments but feel I should clarify a few things. The video was made as part of my degree, was marked by the academic staff of the University and received a very good grade (the best of any of the videos made). At least three of the people involved in the making of the video (including myself) are now training to be doctors so this wasn't made by insensitive idiots.

The PING, incidentally, was only a reference to the sound that would have been made by the glove, nothing else.

[owenrilla]

I am fully aware of the seriousness of the condition and the video was in no way intended to make light of it. The aim was to produce something informative but to some extent entertaining. Admittedly entertainment is not the main concern for parents who want to find information on the condition but there is a lot of dry information in the video and the breaks from this are to keep the interest up.

[owenrilla]

Finally, I would like to say that soon after I posted the video I was contacted by CHERUBS asking if they could use the video as they liked it and thought it would be of interest to people reading their blogs and website so while I can see where your comments are coming from I do not feel they are universal

I am delighted that your baby survived, I heard a lot of sad stories while researching the video and hope that further developments in this field will allow improvements in the survival rate

[AlaskanTeacher]

Last, you can see I removed some posts. I was simply getting these statements in the proper order, nothing more. :)

I wish you the best of luck and hard work in your medical career. Please don't forget what I've told you here.

Sincerely,

Megan Larson

Health teacher (in a way I now work in the preventative side of medicine!)

Anchorage, Alaska

[AlaskanTeacher]

Just keep our story in mind as you pursue your degree, Owen. The information your patients receive can be devastating. Put yourself in the patient's place. Think about how it is for them. We ended up at Denver Children's Hospital because we felt like they would treat us and our baby as people, and they did. One doctor even called us from his home to see how we were doing and if we had questions. That is what won us over. And they saved him.

Thank you for reading all this.

[AlaskanTeacher]

She asked us if we had any questions. We were in shock. We had just seen our baby's beautiful face on the ultrasound. We had felt his kicks. We had named him and set up his room. All I could ask was, "What did I do wrong?" She explained I didn't do anything wrong, that the cause of cdh is not known. I didn't know what else to ask or how to help my baby, or even if I could. They didn't have a counselor come in or anything. We had about 5 minutes of explanation and then we were dismissed.