From the Heart - Niemann-Pick Families share feelings (pt2)

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Uploaded by on Nov 10, 2008

Families of individuals who suffer from Niemann-Pick Type C (NPC) disease share their feelings and experiences.

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  • My son Calum suffers from this and is slowly deteriorating. I know there are some people in the world worse off but this is heartbreaking to watch your child degenerate in front of you and theres nothing you can do

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