My Muscular Dystrophy Bio
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Uploader Comments (EricNinden)
All Comments (271)
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are you on any medication ? have you used a dystrophin therapy ?
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I have it to .but not Duchenns, I do however have a wheelcair. It suxks you know.
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Thanks for sharing your story
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do you take Deflazacort ?
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Thank you for sharing, Eric. This vid is pretty old now. How are you now? You seem to have very impressive mental strength.
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Eric, I was moved by your video. I see you haven't posted in a while. How are you?
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man bro, thats just some fucked up shit!!
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I'll keep you in my prayers, you inspire many.
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@Eric - I'm participating in the MDA Lock-up to raise money and I was looking for a video to include in my blog post... This is it, this is the one. I wish you the best - Karla
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@EricNinden I take care of someone who has DMD, and he's the sweetest guy ever. In fact, I've learned a lot from him concerning DMD. In my client's case, he usually wears headphones either to listen to music or if he has to talk on the phone since he can't use his arms and stuff. Anyhow, thanks for posting this.
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can i ask why i always see guys with duchenne dystrophy with headphones on?
munchkin809 1 year ago
@munchkin809 Probably because nurses/caretakers are always coming in unannounced and it's good to keep what you're listening to private. That's why I wear them, at least.
EricNinden 1 year ago
I'm inspired
SEROTONlN 1 year ago 4
@SEROTONlN Thanks for the kind words. :)
EricNinden 1 year ago 2
Deleted all the comments involving "FitnessMasterpiece" because they were woefully under informed about the severity of this condition, and I didn't want others with DMD to read these comments and get upset.
I gave you a fair shot, but you just proved how ignorant about the topic you are. Read up on it before coming here, posting advice that couldn't possibly work, then saying a cure exists. It's insulting to people that suffer with this disease for years.
EricNinden 1 year ago 8
Hey Eric, I'm 15 and I have DMD. My Mom found out b4 I was born. My brother also had it but, he passed away in 2006. They took a sample from my bro when he was a kid, but not me. My cousin Jeff had it, but he also passed away in 2004.
TomStanitisJr 1 year ago
@TomStanitisJr I'm sorry to hear that. I'm fortunate enough to not have any family with MD. :\
EricNinden 1 year ago