Albinism: A Mother's Perspective

A mother talks about her experience of having a child with albinism

Category:

Education

Tags:

• University
• albinism
• movies
• genetics
• Iowa
• Braille
• and
• Sight
• Saving
• School
• mainstream
• blind
• vision
• albino
• albinoism

[sasukewife15]

i have albinism and i have face some of the same challanges, and i also am able to drive, and i see that he played goalball, i was on an advanced tean that i played at Texas School For The Blind And Visually Impared, and i'm extrenky happy a mom can tell her side of having a child with albinism

[rattypajamas]

@sasukewife15, How interesting! Have you played beepball? It is always funny when the Braille students play against the sighted kids, and kick their butts.

[drifty300]

Just curious. Have you ever heard of a program called Zoom Text? It's a screen magnification program for computers running on Windows. You mentioned in you video that your son has to get his really close to the computer screen. Anyway, screen magnification programs help a lot. I use the one that came with my computer.

[rattypajamas]

Yes, we have that on our computers. Zoom text is great! Thank you for mentioning that.

[AnimeShineChihiro]

Your son is so cute! I wish you guys the best. :)

[rattypajamas]

Thank you. I like your Anime. Did you create them yourself?

[pwlover91]

Please realize that being in a wheelchair isn't something bad. You shouldn't be saying "well were better off to be having this instead of being in a wheelchair etc etc etc".... Gee thanks how does that make us feel?. I have Spina Bifida, and I am as well off as anyone.

[sasukewife15]

@rattypajamas

no i have not but one of my friends plays for the San Antonio team

[ThisIsSirBrilliant]

great video. I think your number was a little too low. it is actually 1 in 17,000 not 10,000. Someone else may have caught that but again great video, It is very informative.

[joyfully79]

Hello! I also have a 3 year old son with albinism. Thank you for your story, I have really experienced a lot of the same things that you have. How well does your son see? 20/200? better or worse? Does this change from year to year? Thanks! God bless you for sharing your story!

[makeupbykaty]

What an amazing video. Everything you said was identical to my experiences with my daughter Sally in England. She has just been to the NOAH conference in Washington D C

[joyfully79]

Hello! I also have a 3 year old son with albinism. Thank you for your story, I have really experienced a lot of the same things that you have. How well does your son see? 20/200? better or worse? Does this change from year to year? Thanks! God bless you for sharing your story!

[thunderw96]

I liked the way you talked about the positive side of this situation. The only thing I really disliked was the stereotype toward blind people. I have met quite a few blind people in my lifetime and some of them walk around town with a cane and thats all (I live in a large city as well). One example of this is my uncle, who lost his eyes in an accident, he walks with the aid of a dog but doesn't wish to have the help of another human. Another example is my best friend's mother, who acts the same.

[tomodachiag]

I LOVED the video!

It's just so informative and so sweet... only a mom can do that =)

Congratulations! loved it.