Girl beating odds of Pompe disease

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Uploaded by on Jan 28, 2010

A fourth grader in Grabill is thriving with Pompe disease thanks to new treatments for the incurable genetic disorder.

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News & Politics

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  • hi my name is veronica im 14 and also have pompe disease. i have type 2. i get treatments every 2 weeks through an i-v.i live in PA. if i can get any contact with the parents of there daughter please right back to me and i will personally give u my email address.It is very rare for me to see children with the same disease as i do. if u would like any information on my disease please write back to me! - veronica

  • @Q0n3K0Q i'm sorry

  • my dad got that. cant walk & cant understand him @ ALLLL

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