My Baclofen Pump

This is a video of me showing my baclofen pump surgical site!

Category:

People & Blogs

Tags:

• baclofen
• pump
• cerebral
• palsy
• disease
• neurological
• spasm
• spasticity
• surgical
• site
• surgery
• Operation
• operating
• room

[neurodoc170]

Hi Alin, the name is Dave andd I"m a neurology resident with the University of Toronto doing a study on movement disorders (such as cerebral palsy, hence how I found your videos) and I was wondering if I could pick your brain. I feel that you could offer a lot of insight. Thanks for your time and if you're interested drop me a line! Dave

[alin0steglinski0]

@neurodoc170 feel free to pick my brain

[85funnyguy]

i have a baclfenpump as well i was born with mild cp and when i had it put in in i became very sick from the spinal tap

[alin0steglinski0]

@85funnyguy that sucks. i had a headache but no sickness

[kirafaye]

My sisters destroyed hard drive is my nerd paper weight.

I don't mind the idea of surgery for the pump per se because i understand machines just run out/need repair but a longer lasting battery or rechargeable battery. I know our internal mechanics tend to be more uppity and prone to issue compared to the item outside of our body running. I would love someone working on making better shunts, I have a threat of getting one and i see how often people with my condition get revision surgeries

[alin0steglinski0]

6 years for a pump battery is a long time at this point. I do not foresee a pump with a longer lasting battery right now.

Better shunts, heh, you just mentioned another one of MY inventions that you might see.

what would the shunt be for?

[1006fizz]

@angelbaby39180 erm i had my baclofen pump just over 12 months ago and had no trouble post surgery and it didnt hurt too much having the incision,just tender around the stitches, with regard to the test, if you want me to be honest, it was not a very pleasent experience and it may be that this is the worse bit, which i found it to be, but just a little bit of advice, they dosay if you can lie still for a few hours after the trial the side effects arent as bad.

Hope this helps !!

[angelbaby39180]

Is the surgery painful? My 8 year old is getting one. Is having the test FEb 2, 2010.. he also has a gtube. He has static encephalopathy and cannot talk so I only know he's in pain when he cries.. if there is pain, where does it come from? the incision?.. etc.. what about the test.. does that hurt?

[Monkofmagnesia]

I am going to have my third baclofen pump put in me on March 15th. The first one had to be replaced after 4 years because the battery was dying. I remember the neurologist telling me, "We don't actually know what will happen if the pump stops working." He mentioned that side effects from sudden baclofen withdrawal are seizures, coma, and death. I have spastic diplegia.

[alin0steglinski0]

Definitely a true elite medical nerd paperweight! Would look awesome in my room with how much medical stuff I have to begin with! And it would be a good specimen to take apart and put back together to see how it works. :P

I cannot share with you my idea but I am working to develop a pump that will allow the user to keep their pump infinitely.