NICE review? The CFS/ME guidelines Judicial Review - 1

Every Monday, through the late spring and early summer of 2009 on GBC Two.

Recorded over four months, this is the first in a series of video clips reflecting on the Judicial Review
on the NICE guidelines for CFS/ME. The video clips were edited in chronological order. I would like to express my profound thanks to those who accepted the opportunity to appear for without you this video would not have been possible.

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STATEMENT REGARDING PARTS 12 and 13 OF THIS SERIES AT THIS ADDRESS: http://creamcrackereduk.wordpress.com/2009/08/18/statement-in-response-to-pro...

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Category:

News & Politics

Tags:

• myalgic
• encephalomyelitis
• chronic
• fatigue
• syndrome
• court
• london
• royal
• justice
• national
• institute
• health
• clinical
• excellence
• encephalopathy

[redrachel76]

"CBT is a talking therapy which can't cure a person with a physical illness.."

Says it all.

[action4change4me]

The ME community needs to take action against the imposition of CBT and GET on us by the NICE Guidelines, and to open up biomedical treatment options. The JR failed so we cannot rely on the courts, therefore we need to lobby government the MRC and the DoH for what we want in direct campaigns which state patient and carer opposition to CBT and GET.

[PostHuman2113]

Haha..don't you love buses!

they kill me out in the town centre and they kill me over the internet because of the huge loudness...

[PostHuman2113]

Just KILL THEM!! KILL THEM ALL!!!!

[action4change4me]

The word fatigue is a broken & hostile one for ME sufferers/carers. It belittles and psychologises the symptoms of a devastating neurological disease. It is the very word that is used by medics & researchers who believe we are simply tired all the time for psychological reasons as they believe there is nothing physically wrong. It should not be used by medics & researchers who claim to be on our side as the title for a journal that claims to speak from the biomedical point of view.

[action4change4me]

NICE commissioned the York Review to conduct a Meta-analysis of the published CBT & GET papers which NICE then evaluated through the use of their own scoring system to asses the weight of evidence for and against CBT & GET. There are a few research papers which state that CBT/GET does not work, but we need a great many more to tip the balance of the weight of evidence against the researchers who claim these psychological treatments work. This will take many years.

[denlander]

The NICE decision was biased one sided . There is data to show that CBT and GET are ineffective as treatment methods. The sooner that this data is published the better. It refutes the NICE report. ME/CFS is a physical disease.

Derek Enlander MD

[MEagenda]

ME Awareness week. Today is 12th May.

Dr Shepherd (MEA), Dr Enlander, Dr Kerr and associates have chosen today, of all days, to launch news of a new title.

A journal called "FATIGUE".

Why not just take Myalgic Encephalomyelitis and put it on a plate marked F48.0 and hand it over right now to Wessely, White, Sharpe, Creed, Chalder, Moss-Morris, Mayou, Escobar, Kroenke, Fink, Barsky, Henningsen...

Lost for words. Blind with anger.

"A new Journal FATIGUE will debut early 2010."

[fogggygyrl]

The UK is ignoring all of the factual data about ME/CFS in order to promote harmful programs like GET and CBT and the CDC in the US is following suit. They've all been exposed to enough testimony by patients, their carers, and CFS specialists to know better. They are lying to us and lying to the public and they know it