Tatum EB Hope
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Uploaded by rarediseaseday on Dec 14, 2010
Tatum was born with Recessive Dystrophic Epidermolysis Bullosa, a rare disease with a big name that means the "glue" that holds our skin intact is missing. The slightest knock, rub and even touch will blister and even tear off her skin.
A National Epidermolysis Bullosa Registry reports less than 50 EB cases per one million live births. Tatum's form of EB is the most severe type, causing blisters or tears over most of her body, loss of nails, atrophic scarring, anaemia and severe growth retardation. This form will also lead to serious eye inflammation with erosion of the cornea, early loss of teeth due to decay as well as blistering and scarring inside the mouth and gastrointestinal tract. Finger and toe fusion as well as loss of mobility are a reality for those suffering from EB.
EB is a genetic disease - without a cure it will never get better. The only treatment is daily bandage changes and prevention of infections and trauma to the skin. Many food and nutritional supplements are needed every day to help Tatum's body keep up with healing. Even with all of these precautions, Tatum's type of EB leads to the most severe form of skin cancer. This is the most common cause of death for EB sufferers, usually between the ages of 15-35.
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@cutmeyemaya she's my ''little sister"!! check out my page for more EB videos :)
caferoyale123 1 year ago
Brave little girl, I have EB too.
cutmeyemaya 1 year ago