Segment from the Today Show featuring Cindy Parseghian from the Ara Parseghian Medical Research Foundation and Andrea Marella talking about what it's like to be the mother of a child with Niemann Pick type c
Hello. My heart goes out to you and your family. My family and I are suffering from this disease and I hurt everyday watching my nephew having to suffer from this. I will not give up on this as I do walk-a-thons and other events to raise money and awareness. I want to do more to get my families story out there. I have a bit of a medical background and will continue to learn more to help families who suffer and who need advice. Please reach out to me as I'm reaching out to you.god bless
Hello. My heart goes out to you and your family. My family and I are suffering from this disease and I hurt everyday watching my nephew having to suffer from this. I will not give up on this as I do walk-a-thons and other events to raise money and awareness. I want to do more to get my families story out there. I have a bit of a medical background and will continue to learn more to help families who suffer and who need advice. Please reach out to me as I'm reaching out to you.god bless
TheNewHomes 1 year ago