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My Dream - Headstrong Competition

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Uploaded by on Jan 23, 2007

This is my dream, and I think it's definitely one that someone has to be headstrong to achieve.
Earlier I uploaded this video in three parts. I deleted it, I re-did it, and it's all in one video now. I also added the story of Sharmyn McGraw, a Cushings Syndrome sufferer, to the video.
Sorry the sound can't keep up with the video!

Zebra Awareness T-Shirt:
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Zebra Awareness Bracelets:
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Ehlers-Danlos Syndrome Awareness Bracelets:
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  • Wow, thanks everyone :D

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  • I hope you do become a doctor, we need good endocrinologists!

  • whats wrong with her? i don't mean that in a mean way i'm talking about how she said "My condition" whats her condition?

  • Is anyone familar with Zyprexa/Olanzapine?!! I have been prescribed this as a muscle relaxant to help me sleep, but all the online info says its to treat Bi Polar?? Woops doc, i have EDS not bi-polar! Can anyone help this mentaly balanced, tight muscled EDS sufferer?

  • i found out this monday that i might have EDS from my martial arts teacher that also have it.

    he recognised the symptoms when i showed him how stretchy i was and how little sleep i get.

    i haven't goten a diagnosis yet but i hope i'll get one next monday.

    just wanted too let you know that i know what you are going thru and i hope for the best.

  • i had a dream once that i was naked in mcdonalds

  • I have EDS too. It went undiagnosed for years. It's pretty frusterating and painful sometimes, ya know?

  • she does not look 16 going on 17! omg

  • Dear Jonna (sp?),

    What a beautiful, sweet, sensitive, and exceptionally wise young woman you are! Thank you for sharing and I know you will be an exceptional MD! Would you consider becoming and Advanced Practice Nurse or Nurse Practitioner? I am, and you definitely are someone whose beliefs and ideals would complement our profession.

    Sincerely,

    Joe K, Advanced Practice Nurse

  • Best wishes in reaching your dream - Most importantly, we NEED people like you to seek this higher standard.

    My daughter who is your age was diagnosed malignant paraganglioma with lymph mets, she is to see a Cushings expert this week - I'll let you know what if anything is discovered! Patti

  • Good For You!

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